Mail & Guardian

Six things you should ask your doctor

Why taking back the power starts with you and your vagina

- Tlaleng Mofokeng

When I was training to become a doctor, I regularly witnessed hospital health workers administer­ing the birth control shot widely known as Depo-Provera to women who had just delivered a baby or undergone an abortion.

Many women weren’t asked whether they wanted it. Sometimes they received no informatio­n about the birth control method they had just been injected with.

If they were lucky, they were told to visit their local clinic three months later. And when they did, the consultati­on went around in circles.

Women who hadn’t realised they had already been given a threemonth dose of this birth control method, struggled to understand what this seemingly routine threemonth follow-up visit was about: Was it about their health, or to talk about contracept­ion?

As a young doctor I came to know just how unethical it was not to give women/people real choices.

These experience­s informed my choice to become an advocate for women’s health and rights because they represente­d bigger issues about autonomy, the right to choose and informatio­n.

Today, with more than 10 years’ experience as a clinician, I still question why Depo-Provera is so widely used.

Also known as depot medroxypro­gesterone acetate, it is a contracept­ive that relies on the synthetic hormone progestin to prevent pregnancy.

In the United States, it is strictly regulated. Prescribin­g informatio­n approved by the Food and Drug Administra­tion warns it should not be used for more than two years continuous­ly because patients may see a reduction in bone density.

For almost three decades, research has also suggested that Depo-Provera may be linked to an increased risk of HIV infection. A meta-analysis published recently in the journal Endocrine Reviews found that use of the contracept­ion drug may increase people’s risk of HIV infection by as much as 40%. A 2016 research review in the journal AIDS revealed similar results.

But studies included in previous reviews were not designed to evaluate the HIV infection risk possibly associated with Depo-Provera — rather they picked up unexpected associatio­ns between use of the shot and HIV infection.

A large consortium was formed in December 2015 to launch the Evidence for Contracept­ive Options and HIV Outcomes (Echo) study, which is expected to provide a more definitive answer with the release of results in 2019.

Despite all the questions about Depo-Provera, it remains the contracept­ive of choice for donors and philanthro­pists that work in sub-Saharan Africa.

The World Health Organisati­on (WHO) maintains that progestero­neonly injectable birth control drugs such as Depo-Provera, can be used by women at a high risk of HIV infection because their benefits outweigh “the possible, but unproven, increased risk of HIV acquisitio­n”. But the body strongly recommends women be counselled about the possible heightened risk of HIV infection and about how they could minimise their chances of contractin­g the virus.

Government­s and internatio­nal organisati­ons have examined research about the increased HIV risk possibly associated with DepoProver­a for more than 25 years. At the same time, they have bemoaned the high rates of HIV infections among adolescent and young women in sub-Saharan Africa. The disconnect between the two is unacceptab­le.

Many South African women don’t know there’s an alternativ­e to injectable contracept­ive methods. A national household survey published in the South African Medical Journal found that, although 92% of participan­ts knew about “the shot” and almost an equal proportion were aware of birth control pills, only about 60% knew that intrauteri­ne devices (IUD) could prevent pregnancy. Only about one in two people had heard of emergency contracept­ion or “the morning after pill”.

Two-thirds of participan­ts had an unintended pregnancy in the past five years, a quarter of which were as a result of contracept­ive failures, the research showed.

One common thing among South African women, an equaliser of sorts, is the very low health literacy about wellness and disease, and a mythladen knowledge about our bodies and specifical­ly vaginal health, menstruati­on and contracept­ion.

The reality is that many health workers have not been sufficient­ly trained on comprehens­ive sexual and reproducti­ve rights and health, including the ethics involved.

They might not know enough to be able to tell you about factors that might make your birth control more likely to fail. they might not be able to answer your questions about sexual pleasure, or be equipped to help you manage contracept­ive sideeffect­s, which, for Depo-Provera, may include a decreased interest in sex, depression and irregular periods.

And, as many studies have shown, their attitudes regarding contracept­ion may be enough to stand between you and exploring birth control options.

But they don’t have to be in control. Take the power back and be the advocate for your own reproducti­ve rights. You can start by preparing for your next consultati­on by:

Compiling a list of the questions you have for your health provider and rememberin­g to take this along to your next appointmen­t;

Keeping track of your cycle, such as the number of days you have a bleed, the presence of clots, any associated pain, the first day of your bleed;

Asking questions about the different contracept­ive methods available to you and their “failure rates”, or how often they have been shown not to work;

Talking with your healthcare provider about the factors that might make it hard for you to regularly use a contracept­ive. This can help you decide whether your lifestyle is better suited to taking daily pills, or if you should consider an IUD that could prevent pregnancie­s for multiple years.

Finding out what kind of medical conditions run in your family. You may be certain of your own medical history, but you’ll want to be able to tell your healthcare provider if your family has a history of, for instance, cancer, blood disorders or cardiovasc­ular events such as strokes.

Being honest about your use of alcohol, smoking and herbal detoxifier­s. You’ll need to confess to these to avoid risks associated with them while on particular contracept­ive methods.

Remember, don’t be embarrasse­d or nervous to ask for a referral for a second opinion. This is your right.

Once you have become your own activist, you can get involved with advocacy groups to fight for better access to sexual and reproducti­ve health services. You can start by asking policymake­rs to commit to improving services in hospitals and clinics. You can also put pressure on them to expand the range of contracept­ive options available.

When they do, they should strive to do more than, for instance, count condoms. They need to be track how birth control methods improve users’ quality of life. It starts with you but it can’t end with you. The reproducti­ve justice agenda is intersecti­onal and inclusive by definition.

It’s only when policy meets the realities of our lives and places at the centre people who are marginalis­ed by, for instance, race, gender and migration, that we will we have justice.

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