Weekend Argus (Saturday Edition)
The ‘terrorist’ inside the Oscar-winning comedian’s brain
LONDON: Robin Williams’s widow Susan Schneider Williams has penned a poignant essay recounting the actor’s “tragic and heartbreaking” final months before his suicide.
Written for the journal of the American Academy of Neurology, “The Terrorist Inside My Husband’s Brain” details the Oscar-winning comedian’s private, undiagnosed struggle with a form of dementia called Lewy body disease.
Schneider Williams describes in detail the toll the disease took on him, with the symptoms ranging from insomnia to tremors, anxiety, digestive problems, significant memory loss and paranoia.
“This is a personal story, sadly tragic and heartbreaking, but by sharing this information with you I know that you can help make a difference in the lives of others,” Schneider Williams writes.
“As you may know, my husband Robin Williams had the little-known but deadly Lewy body disease ( LBD). He died from suicide in 2014 at the end of an intense, confusing and relatively swift persecution at the hand of this disease’s symptoms and pathology. He was not alone in his traumatic experience with this neurologic disease.”
Schneider Williams did not learn her husband had been living with LBD until three months after his death when the coroner’s report was released. All four of the doctors she had consulted in the aftermath of his death said it was one of the worst pathologies of the disease they had ever witnessed.
“Once the coroner’s report was reviewed, a doctor was able to point out to me that there was a high concentration of Lewy bodies within the amygdala,” she explains in the letter.
“This likely caused the acute paranoia and out-of-character emotional responses he was having. How I wish he could have known why he was struggling, that it was not a weakness in his heart, spirit, or character.”
According to Schneider Williams, Williams struggled to memorise single lines while filming Night at the Museum 3, even though three years earlier, he memorised hundreds of lines for the Broadway production Bengal Tiger at the Baghdad Zoo and delivered impeccable performances.
“Robin was losing his mind and he was aware of it,” Schneider Williams reflects.
“Can you imagine the pain he felt as he experienced himself disintegrating? And not from something he would ever know the name of, or understand? Neither he, nor anyone could stop it and no amount of intelligence or love could hold it back”.
She wrote: “Powerless and frozen, I stood in the darkness of not knowing what was happening to my husband. – The Independent
and frozen, I stood in the darkness of
‘Powerless
not knowing what was
happening’