Winning letter Up for grabs tenby

[get set forschool] Of a Margot Bertelsmann

Our son Tristan was born with cri-du-chat syndrome, a chromosomal condition that affects one in 20 000 to 50 000 newborns and is characterised by intellectual disability and delayed development. at first it was a huge shock for us, especially when therapists and doctors told us about all the limitations that Tristan will probably have to face in his life.

Fortunately we had amazing people by our side, and family and friends kept on telling us to just take it one step at a time. So we took it one step at a time, and we never knew that this would turn out to be the best time of our lives.

Tristan works hard every day in therapy and we could not be prouder! With the help of the special team of therapists and doctors looking after Tristan, he now sits by himself, has started babbling more every day and suddenly he just wants to move, swim and give out kisses. Never say never – three very important words!

I am so grateful that we never put any limitations on our son despite what we read or heard about this syndrome. Every morning I stare at my precious Tristan while he is still sleeping and I can’t help but to say a prayer of thanks, appreciation and love. He is truly the best thing that could ever happen to me. To all the people that have children with disabilities, know how truly lucky you are. and when times get tough, remember that you are stronger than you think. Keep going and enjoy every moment – you are doing a great job.

Tristan, I love you now and always and every moment after that. Thank you so much for being such an amazing son, for keeping me on my toes and teaching me something new every day. I am so proud of you!