Fighting the Aids stigma
IN the12 years since she was infected with HIV by her partner, human rights activist Simphiwe Gumede says she has grown stronger in her determination to fight the stigma of the virus.
Speaking to the Zululand Observer about living with HIV ahead of World Aids Day on 1 December, Gumede said she is an example that HIV is not a death sentence.
The community leader uses her story at seminars and motivational events in King Cetshwayo District to inspire others and make a difference.
Through her talks, she continues to bring light to the subject of discrimination against those living with HIV.
“I have spent 12 years living with the virus, and have become a mother and a leader,” explained Gumede.
“I still maintain that the virus will not define me. I will use it to elevate myself and others through various programmes.”
She said she does not buy into 'false prophets' who say they have a cure, but rather believes in selfacceptance.
“I wake up every morning feeling good about myself, and successful because I am not in denial about the virus. I
acknowledge it as part of me.”
Simphiwe said poverty, racism and gender inequality are some of the contributing factors fuelling a lack of social understanding.
However, she said it is important to recognise government’s improvement on HIV testing and anti-retro viral (ARV) medication, as well as fighting gender-based violence (GBV).
According to Gumede, research reveals that a higher number of people in the region are getting tested.
‘‘We have seen improvements and citizens now understand the importance of knowing their status. This ensures they are able to get medication and begin treatment,’’ she said. Although ARVs are not a cure for HIV, the treatment can help infected people stay healthy for many years.
However, alongside treatment, Gumede said pre- and postcounselling are important. “There are no proper structures that guide people on what to do after getting their results. Some find it difficult to move on and reveal the information to their family because they don’t know how to.” She said this can lead to patients not starting their medication on time, while others simply stop taking it.
“They are not properly guided, which is very dangerous because when you live with HIV, you need all the advice you can get to live a great life,” she said.
When he deliberately infected me with HIV, his intention was for me to die with him, but instead he gave me wings to fly and reach the stars