Tricia Garrett

turned 18 and Luke would have been 21.

“Anna had to spend her 18th birthday without her brother, it’s just not fair.

“We always did things together as a family, it’s hard to put into words how we feel now.

“We have just spent the last few weeks in shock.

“We loved going on holidays together. “They were always special times, we went on four holidays a few years ago.

“He was always so much better in the heat and the sunshine so we always tried to get away as much as possible.”

Football-daft Luke supported English club Arsenal and was an animal lover with his dog Jay, a big support to him, helping him get off the floor if he fell over.

Tricia said:“He had started volunteering, he wanted to work but he wasn’t reliable enough with his condition. He liked to do some volunteering and keep busy.

“He couldn’t play football any more but he would watch and try have a kick about. He just liked being with pals.”

Tricia has told how Luke, who bravely battled with muscular dystrophy since the age of six, was due to move into his own place after an application for independent living was approved.

She added:“Luke lived with muscular dystrophy from when he was six years old until he died.

We fought hard for Luke to have a good life, and he did the best he could.

“He was going to live on his own and be independent.

He was looking forward to so much and thought this vaccine would give him his life back.”

We always did things together as a family so it’s hard to put into words how we feel now