‘HE’S SUCH AN INSPIRING AND WONDERFUL BOY...I WON’T GIVE UP UNTIL HE DOES’
TRACEY Cochrane has written an open letter in the Daily Express begging drug makers Vertex to save her “wonderful boy”.
She tells the US firm she fears Ayden, 13, has just days to live without their new wonder drug Trikafta.
Mother-of-five Tracey, 33, writes: “Please don’t let my son die, he has so much more to give.
“Vertex, you are the only people right now that can give him a chance, to be his heroes and the power to grant him life.
“Watching your child go through this – while watching other CF sufferers on Trikafta around the world have amazing results – is heartbreaking.
“But Ayden is so strong, he is determined to try to get better, and I won’t give up fighting until he does.
“He won’t have long to live, just a few days, if he doesn’t get help very soon. His situation is that serious.
“Fluid is starting to collect in his lungs because we can’t seem to shift the infection.
“My heart is shattered watching him panic each time he’s touched because he can’t hear us talking to him as the fluid is even in his ears. I’m sorry if these pictures are upsetting for people but I am so bloody proud to be this boy’s mum.
“I have no idea what I did in life to deserve him – he’s such an inspiring, brave and wonderful boy. I’m the proudest mum in the world.
“I just wish I had his strength and determination. When he told me he was scared of dying, my heart broke.
“It is just not fair on him, that he must beg for the chance to live.”