My Ayden would be proud
Delighted... Kelli Gallacher will benefit
Maggie Gallacher, 53, been years coming amazing news.
“Now hopefully many hundreds of parents won’t have to go through the gruelling battles we have gone through to get these lifesaving medicines.
“Kelli is over the moon. This will help secure her future.
“I don’t drink, so will celebrate instead tonight with some Irn-Bru in a champagne glass.”
Last autumn Vertex signed deals with all of the UK countries for their current pills, Orkambi, Symkevi and Kalydeco. They are suitable for around 50 per cent of sufferers.
But last month NHS England signed the first UK landmark deal for Vertex’s latest and more effective drug Kaftrio.
It will be licensed for use in Europe told but us: “It’s this is
ONE CF sufferer who campaigned for Kaftrio was schoolboy Ayden Cochrane, who died aged 13 in January just hours after being approved compassionate access to the wonder drug.
Yesterday his mum told how her brave boy would have been proud to have helped towards this lifesaving deal.
Mother-of-five Tracey Cochrane, from Johnstone, Scotland, said: “We are overwhelmed by the news today. Ayden would have been mighty proud to be a part of that fight.
“This would have made him really happy and gives us some comfort that CF sufferers we know now have a great chance at life.
“We definitely have moments of wishing this was last year, but Ayden was never negative about his life.
“So we take great pride in his fight.”
next month and the rollout of drugs to sufferers across the UK will start shortly afterwards.
Kaftrio will eventually be able to be taken by 90 per cent of UK sufferers but as yet is only licensed for adults and children aged over 12.
Until then young CF children, who are medically able to, can only take Orkambi.
Scottish Health Secretary Jeane Freeman, said: “This is a potentially transformational treatment for CF.
“I am delighted patients in
Scotland will benefit and lead longer, healthier lives.”
Vertex told us: “We look forward to continue working in collaboration with the authorities in Scotland to finalise the agreement as soon as possible.”