Daily Mail

DEAR BEL

- TINA

I AM 73 and have been married for 54 years — with one daughter, who lives and works abroad.

My husband is 81 and suffering from vascular dementia. He has expressive dysphasia, incontinen­ce and is almost completely immobile, necessitat­ing two carers calling four times a day.

They are excellent and give me lots of support and in general I am better off than many other people.

But after 15 years of this degenerati­ve disease I am coping very badly. I dread waking in the morning and I am starting to feel very resentful. This is not how I imagined my golden years.

My daughter is a great support and has offered to return home to help with her father’s care (she has already arranged a shorter working year in order to come home more frequently), but I cannot even think of it.

The obvious solution of course is a residentia­l home, but I gave him my word this would never happen.

I try to visit my daughter as often as I can. But the effort and forward planning needed make things very difficult. A counsellor was excellent, but funds ran out, then I was limited to only a few sessions on the NHS.

I have contacted associatio­ns such as Age UK, but they seem to miss the point — arranging lovely outings and lunches for carers, but forgetting the need for respite care for loved ones while we arrange our own entertainm­ent!

On the scale of things, we’ve had a good life and perhaps it’s wrong of me to complain, but at the moment I just feel like walking away from it all. Can you help?

Newspapers in English

Newspapers from United Kingdom