Help Jack get the treat­ment he so needs

Halifax Courier - - Yourcourier - By Felic­ity Macnamara

A cou­ple are ap­peal­ing for help to buy their baby son a spe­cial hel­met which will treat a con­di­tion classed as ‘cos­metic’ by the NHS. Adorable Jack Davies was born with pla­gio­cephaly, more com­monly known as ‘flat head syn­drome’.

The con­di­tion can af­fect up to 20 per cent of ba­bies, but re­con­struc­tive treat­ment through a spe­cial hel­met is not avail­able on the NHS as it is classed as non-med­i­cal.

Mum Amy Pear­son, 25, and her part­ner John Davies, 40, from Pye Nest, Hal­i­fax, have raised nearly £1,000 to­wards the £2,000 pri­vate bill to get four-month-old Jack spe­cial treat­ment.

It’s now a race against time to get Jack his hel­met be­fore he reaches six-months-old and the soft spot of his skull closes.

Amy, who is cur­rently on ma­ter­nity leave, said: “Our three-year-old daugh­ter Iso­belle had the con­di­tion when she was born.

“We took her to the con­sul­tant at Calderdale Royal Hos­pi­tal - they said there was noth­ing they could do and it would right it­self.

“We just left it, be­cause we didn’t think any­thing else of it.

“It has come right a lit­tle bit, but not com­pletely and when we took Jack, they told us ex­actly the same thing.

“My friend said to me that she had been to the Steeper Clinic in Leeds and that’s when we de­cided to take Jack.

“They did scans of his head and they have said he falls in the se­verely de­formed cat­e­gory and that he des­per­ately needs a hel­met to cor­rect his head shape.

“He hasn’t got any prob­lems, but our lit­tle girl has de­vel­oped re­ally bad vi­sion and has got a lazy eye.

“We don’t want the same for Jack, es­pe­cially as it could be even worse. The NHS say that it is cos­metic and not med­i­cal.”

If all goes to plan, Jack will be fit­ted for the spe­cial hel­ment in March and it will be made in Amer­ica.

Amy added: “It would give us peace of mind and we would know that he wouldn’t have any dif­fi­cul­ties then.

“With Jack be­ing worse than Iso­belle, we want to get it early. With her we let it go, we took the ad­vice, but with Jack we can’t do that.

“There’s go­ing to be fam­i­lies out there who will take it as gospel, but we want peo­ple to know that there is help.

“It does cost money, but it is go­ing to be worth it for Jack. If you have any doubts, get it looked into straight away.”

To help the fam­ily out with their fundrais­ing mis­sion, visit crowd­fund­ing.just­giv­ing. com/amy-pear­son-1

Amy Pear­son and John Davies with lit­tle Jack

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