Mum’s wait for a donor

Macclesfield Express - - FRONT PAGE - ALEX HIB­BERT

AY­OUNG mum is fac­ing an anx­ious wait for a cru­cial dou­ble lung trans­plant to en­able her to live a nor­mal life again.

Naomi Hulme, 22, is bat­tling cys­tic fi­bro­sis, a ge­netic con­di­tion which over the last three months has caused the con­di­tion of her lungs to rapidly de­te­ri­o­rate.

Naomi, who is mum to four-year-old Leo, needs oxy­gen 24 hours a day, is wheel­chair-bound and fed through a tube.

Naomi’s only chance of liv­ing a nor­mal life is to find a new pair of lungs. She is cur­rently on the or­gan donor wait­ing list.

Her mum, Jackie, said: “The last few months have been in­cred­i­bly dif­fi­cult. Naomi has lived with cys­tic fi­bro- sis since she was di­ag­nosed with it when she was two, but in the last three months her lungs wors­ened con­sid­er­ably.

“We are all des­per­ate to find a donor so that our lit­tle girl can live a nor­mal life with her son. All she wants to do is be at home with Leo, one of the only times she has man­aged to get out of hos­pi­tal re­cently was to pick him up from his first day at school.”

Naomi, of Knights Close, Mac­cles­field, has spent three of the past five months be­ing cared for at the Wythen­shaw Hos­pi­tal

But Jackie says even find­ing a suit­able match is no guar­an­tee that the op­er­a­tion will be a suc

cess, though it is Nao- mi’s last chance at a nor­mal life. She said: “Even if they find a match it’s not def­i­nite that the op­er­a­tion will be a suc­cess. The doc­tors will have to do a se­ries of tests be­fore the op­er­a­tion can even go ahead.

“It is heart­break­ing, we are all just sat here not know­ing what is go­ing to hap­pen. All Leo wants to do is be with his mum, and all Naomi wants to do is be with her son.”

Lita Louis, a friend of the fam­ily, has taken it upon her­self to raise aware­ness of Naomi’s plight and do what she can to help the fam­ily.

Lita said: “Naomi has got an in­fec­tion.

“She was rushed to hos- pital last week after get­ting out to be with Leo after he went to have his ton­sils out. We are telling peo­ple how im­por­tant it is to sign up to the or­gan donor reg­is­ter. Just tak­ing a few seconds to do so can save some­one’s life.”

To help care for Leo while for­mer Tyther­ing­ton School pupil Naomi is in hos­pi­tal, her dad Bar­rie has had to give up his job as a scrap­yard worker.

Lita has or­gan­ised a fundrais­ing event to help the Hulme’ fi­nan­cially as they strug­gle to cope.

The event will take place on Satur­day, Oc­to­ber 11, at The Queen’s Ho­tel, Sun­der­land Street, Mac­cles­field.

Dur­ing the night, which starts at 7pm, there will also be a raf­fle, which will be drawn on Oc­to­ber 31. To buy a ticket, call Lita on 07591

677039.

● Top: De­tails of the fundraiser● for Naomi; Lita ewis with Naomi and Jack­ieL

●● Naomi Hulme; In­set cir­cled, with her son Leo; Be­low, Naomi with dad Bar­rie, mum Jackie and Leo, four

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