Martha’s fam­ily fundraise to thank hos­pi­tal

Macclesfield Express - - FRONT PAGE - STU­ART GREER

THE fam­ily of a baby girl born with a rare ge­netic con­di­tion have thanked Mac­cles­field Hos­pi­tal for sav­ing their daugh­ter’s life.

Martha Hinch­liffe has Wolf-Hirschhorn syn­drome, which causes low mus­cle tone, heart prob­lems and de­lays in de­vel­op­ment.

The one-year-old gave her fam­ily a scare re­cently when she be­came poorly and was rushed to Mac­cles­field Hos­pi­tal.

Af­ter days on a life sup­port ma­chine, Martha is now re­cov­er­ing at home on Bux­ton Road, Mac­cles­field, with mum Natalie, 33, dad Nev, 35, and sis­ter Nancy, six.

Now the fam­ily has launched a fundrais­ing cam­paign to help re­vamp the chil­dren’s ward.

Natalie said: “Martha was in hos­pi­tal for over a week and on life sup­port. It was a scary time. The nurses and doc­tors were amaz­ing.

“We wanted to give some­thing back and no­ticed that the chil­dren’s ward was in need of some TLC.”

And thanks to money gen­er­ously do­nated to the fam­ily, they have al­ready bought and do­nated five TV and DVD play­ers. They are now hop­ing to raise enough money to buy new colour­ful cur­tains for the ward.

Natalie said: “Ear­lier this year Arighi Bianchi and Skin Cre­ations on Sun­der­land Street raised some money for Martha to help with her fu­ture treat­ment. We de­cided to use that cash to ex­press our grat­i­tude to the bril­liant staff at the chil­dren’s ward who helped us through a tough time.”

Martha was born in Au­gust last year and soon de­vel­oped prob­lems. Doc­tors found Martha had a ‘floppy throat’, prob­lems with her left foot and eyes, a hole in her heart and tight valves.

A chro­mo­some test con­firmed she has Wolf-Hirschhorn syn­drome, which af­fects one in 50,000 births.

Martha is fed through a tube and needs daily phys­io­ther­apy. She also has reg­u­lar con­sul­ta­tions with ge­netic coun­sel­lors, speech ther­a­pists, eye spe­cial­ists, car­di­ol­o­gists, au­di­ol­o­gists and a neu­rol­o­gist.

With only 180 peo­ple with the syn­drome in the coun­try, in­for­ma­tion and sup­port is dif­fi­cult to come by.

There is also no known cure. Doc­tors can only treat the symp­toms of the con­di­tion when they arise.

Martha’s par­ents have been buoyed by the sup­port of their fam­ily, friends and wider com­mu­nity in­clud­ing staff at Col­lec­taCase in Mac­cles­field, where Natalie works.

Matt Rat­cliffe

●● Martha Hinch­liffe pic­tured with chil­drens’ ward man­ager Claire Fin­ley, staff nurse So­phie Quirk and play ther­a­pist Nikki Rod­man

●● Martha Hinch­liffe

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