Mum’s quest to keep son bik­ing

‘Josh loves the speed and the wind on his face’


Cru­sad­ing mother Sarah Duane has gone to huge lengths to keep her bike­mad dis­abled son Josh rid­ing de­spite his con­gen­i­tal mus­cu­lar dys­tro­phy. Sarah said: “It is strip­ping him of all his skills both cog­ni­tively and phys­i­cally. I am all about fight­ing for a cure and mak­ing mem­o­ries for him. “Josh still tod­dles about but has lost fa­cial mus­cle strength and speech. How­ever, he con­tin­ues to love mo­tor­cy­cles and I have man­aged to prob­lem-solve the seat­ing, hel­met and har­ness dif­fi­cul­ties so he can still ride safely with me on our spe­cially-adapted Kawasaki trike.”

Sarah says be­ing on the trike is ther­a­peu­tic for the seven-year-old. “He loves the speed and the sen­sa­tion of the wind on his face. His sight is poor, so any­thing that is sen­sory is great for him. Be­ing on the trike re­ally helps his core strength as he can main­tain a sit­ting po­si­tion with max­i­mum sup­port from the har­ness and the seat. He loves noise too! “I’ve re­cently been try­ing to raise aware­ness of the con­di­tion and I re­cently rode from Land’s End to John O’Groats to do so. The con­di­tion he has is ter­mi­nal and re­lent­less. I wish is was me in­stead of him.”

Sarah and Josh set­ting off for some qual­ity time

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