Mum’s quest to keep son biking
‘Josh loves the speed and the wind on his face’
Crusading mother Sarah Duane has gone to huge lengths to keep her bikemad disabled son Josh riding despite his congenital muscular dystrophy. Sarah said: “It is stripping him of all his skills both cognitively and physically. I am all about fighting for a cure and making memories for him. “Josh still toddles about but has lost facial muscle strength and speech. However, he continues to love motorcycles and I have managed to problem-solve the seating, helmet and harness difficulties so he can still ride safely with me on our specially-adapted Kawasaki trike.”
Sarah says being on the trike is therapeutic for the seven-year-old. “He loves the speed and the sensation of the wind on his face. His sight is poor, so anything that is sensory is great for him. Being on the trike really helps his core strength as he can maintain a sitting position with maximum support from the harness and the seat. He loves noise too! “I’ve recently been trying to raise awareness of the condition and I recently rode from Land’s End to John O’Groats to do so. The condition he has is terminal and relentless. I wish is was me instead of him.”