Our little boy had a stroke
ARUNCORN mother has shared her story of how her young son suffered a stroke on his fifth birthday as she urged other parents affected by the issue to attend an upcoming charity event.
Leanne Jones’s son Callum had a mini-stroke in March this year, initially resulting in a diagnosis and treatment for epilepsy but when the medication was found to have no effect, he returned to hospital where scans and tests revealed he had been experiencing mini-strokes before having a full stroke.
Half a year later and he has made a good recovery but still has problems with his left arm, speech and his behaviour has also been affected.
Callum has returned part-time to St Berteline’s Church Of England Primary School in Norton, Runcorn, having been supported by staff at Alder Hey Children’s Hospital. His family became keen to raise awareness of childhood stroke and funds for The Stroke Association.
They are to attend the Stroke Association’s Childhood Stroke support and information day at Liverpool Central Libraries on Saturday, October 14, and take on the Echo Scouse 5k on Sunday, October 15.
The Stroke Association’s Childhood Stroke Parent support and information days are a chance for parents and carers of youngsters affected by the condition to find out what resources are available.
Leanne said: “Callum had got a scooter for his birthday and was playing, when he fell off and started shaking. We thought he was having seizures or epileptic fits and took him to hospital where they initially thought the same.”
She added: “Callum was left handed so we’re now trying to move everything to his right arm. His behaviour is very different, he’s now much more matter of fact. We know it’s still Callum, but sometimes it’s like a different boy came home with us.
“At first we were in denial, but now we’re adapting and getting on with things. I never thought stroke could affect children, it’s just not something you think will ever happen to your child.
“I watched my son have lots of strokes and didn’t know what was happening to him. Now I want to spread the word and raise awareness and funds, to help other families affected by stroke to get the support they need. It’s something we’re all so passionate about.”
Anna Panton, The Stroke Association’s childhood stroke project manager, said: “Our event in Liverpool will see health professionals from across Merseyside and the North West who work with children affected by stroke speak about a variety of topics including the new childhood stroke guidelines, research ● updates, therapy and rehabilitation, and support in school settings.
“It’s a great opportunity for parents and carers of children affected by stroke to meet others in a similar situation.
“Children and young people are welcome, and separate activities will be planned for them throughout the day.
“We’d encourage any families affected by stroke to register and find out more.”
The Childhood Stroke support and information day will take place from 10am-4pm at Liverpool Central Libraries. Places are limited.
Register at www.stroke.org.uk/childhoodevents, call 07715 065 925 or email childhood@stroke.org.uk