Drum­mers help Elsie fight ill­ness

Work­out to raise cash for sick tot

Rutherglen Reformer - - News - Dou­glas Dickie

Res­i­dents in Ruther­glen and Cam­bus­lang are being asked to drum up a treat for a lit­tle girl suf­fer­ing from a ge­netic dis­ease.

Two-year-old Elsie How suf­fers from the rare ge­netic dis­or­der tri­choth­iodys­tro­phy (TTD).

The ma­jor­ity of chil­dren with the con­di­tion have ad­di­tional sup­port needs. They find walk­ing chal­leng­ing and have poor eye­sight.

Elsie’s fam­ily aim to raise money over the next few years for spe­cial­ist equip­ment and po­ten­tial treat­ment for the cur­rently in­cur­able con­di­tion.

And the lat­est fundrais­ing at­tempt for Elsie’s Jour­ney is a keep-fit event with a dif­fer­ence at Stonelaw Com­mu­nity Sports Cen­tre on Au­gust 26.

Pound is a car­dio ses­sion based on play­ing the drums.

The event will be taken by in­struc­tor Chris­tine Reid and has been dubbed Pound for Pur­pose by Elsie’s fam­ily.

Her mum Michelle is look­ing forward to tak­ing part.

“I’ve never done it be­fore so I’m go­ing along next week to try it out first,” she said.

“It’s ba­si­cally a work­out with drum­sticks. I think it’s quite good for your up­per body and arms.

“I wouldn’t usu­ally be drum­ming but look­ing at the videos it looks like great fun. I think it would cer­tainly help get­ting rid of some frus­tra­tion.”

In­struc­tor Chris­tine is waiv­ing the £5 fee for the class to go to­wards Elsie’s Jour­ney and there will also be a raf­fle for four tick­ets to the ‘Jack and the Beanstalk’ panto at Glas­gow’s SEC.

The money raised will go to­wards sup­port­ing Elise through her con­di­tion. She cur­rently needs equip­ment to help her be lifted out the bath as well as a spe­cial UV gazebo sim­ply so she can go out­side.

How­ever, the ma­jor­ity will be kept in case a treat­ment break­through is made in the fu­ture.

Michelle said: “Elsie is good. She’s still lov­ing life at West­burn Nurs­ery.

“She’s com­ing on at her own pace and is at­tend­ing vis­ual re­ha­bil­i­ta­tion once a month.

“They are try­ing to get her us­ing her sight rather than feel­ing for things.

“The gazebo would be great be­cause we can’t go out as a fam­ily.

“She can’t go out in the sun­light so on the nice days she has to be in­side and some­one has to be in­side with her.

“Go­ing forward, we don’t know if she’s go­ing to need a walk­ing aid. She’s started putting pres­sure on her feet and legs but they go at a dif­fer­ent rate to her top half.

“I’m hope­ful a treat­ment will be found. I am in con­tact with peo­ple in the USA and they are still do­ing research.”

To find out more about Pound for Pur­pose go to Face­book and search for “pound for pur­pose - Elsie’s jour­ney”.

I’m hope­ful a treat­ment will be found. They are still do­ing research.

Lit­tle star Elsie How

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