UK f irst for the girl of 2 prescribed cannabis to cure seizures
LIttLe Jorja emerson yesterday became the first child in the UK to be prescribed medicinal cannabis.
her parents desperately hope it will help the stricken two-year-old, who suffers up to 30 epileptic seizures a day.
clutching the landmark prescription after it was issued by a doctor in London yesterday, Jorja’s father robin emerson said: ‘We have been fighting for over a year, so today has been a momentous day. Now Jorja has hope.’
cannabis for medical use was made lawful on November 1, following the highprofile cases of two other young epilepsy sufferers, Alfie Dingley and Billy caldwell, whose parents were given special permission by the home Office to use products they had already been using abroad.
Despite being legalised, cannabis oil remains medically ‘unlicensed’ and doctors have been reluctant to actually prescribe it.
earlier this week, former university lecturer carly Barton, 32, became the first adult to be prescribed it, to alleviate pain.
And yesterday Jorja became the first child in the UK to receive a prescription after her father persuaded a neurologist at the private Portland hospital in London to help.
he said: ‘the NhS turned its back on us. But I knew when I first met this particular doctor, and she was finally telling me the same as doctors abroad, that Jorja is going to survive.’ he said the Portland doctor had asked not to be identified.
Jorja was born with a rare chromosome disorder, which causes developmental delay. Although not life-threatening, when she was ten months old, it triggered epilepsy – and now every seizure is potentially deadly. the little girl was labelled ‘terminal’ by doctors in Northern Ireland, where she lives in Dundonald, near Belfast.
But Mr emerson, 31, and her mother, carly emerson, 31 – who are separated but devoted to caring for Jorja – refused to accept that nothing could be done. they consulted doctors in the US and Australia who recommended cannabis oil.
Mr emerson, an entrepreneur, said: ‘Jorja has had every drug going but nothing is working. She is on six different medications and still has more than 30 epileptic seizures a day, any one of which could kill her. She is sick every night. I have done research after research, and I have seen the effects in other countries where cannabis is legal and how well it works.’
Yesterday he took his daughter’s prescription straight to the hospital’s pharmacy, to start the two-week process of having the cannabidiol (cBD) drug imported from canada. the cannabis oil is administered from a bottle using a syringe, with a few drops placed on the tongue twice a day.
Mr emerson is paying £3,000 for a three-month supply and will have to fly to London for every repeat prescription. he said: ‘It’s a lot of money, but it’s a choice between my daughter staying alive and dying.
‘It will take a while to kick in, but after a few days we will hopefully see a drop in the seizures, and then we will gradually wean her off the other medication.’
Meanwhile, a parents’ group has launched a campaign to pressurise the Scottish Government into letting their sick children obtain medical cannabis.
even though it was legalised earlier this year, the group, Parents of hope, insist the present laws are too restrictive.
Spokesman Karen Gray, from edinburgh, said: ‘We desperately need a change and the way for that to happen is by allowing us access to medical cannabis.’
‘Choice between living and dying’