So she can donate her organs to others

that night. Ava-Joy’s due date is January 25 but it is likely she will be induced in Christmas week so she is not still-born.

If Ava-Joy doesn’t pass away during labour, doctors are hoping the couple will have at least a few moments with their daughter while she is still alive.

Hayley said: “Even if I get just one second of her opening her little eyes and looking at me, that would be a moment that no one can ever take away from me.”

If Ava-Joy takes just one breath, she will be considered legally alive and will get a birth certificate.

Once she passes away, her organs and tissue will be quickly retrieved and she will then be put in a Cuddle Cot, which cools the baby’s body and prolongs the amount of time parents can spend with their dead child. The couple will be able to dress Ava-Joy in the outfits they have bought for her, take photographs and stay close to her.

This extra time will give the family the chance to say goodbye. Hayley and Scott are also starting a charity project to help other families who decide to carry on a pregnancy after a fatal diagnosis. They want to support families by creating memory packs to help them capture every precious moment. Ava’s Butterfly Baby Pathway will provide families with 4D scans, bump casts, journals, memory books and heartbeat bears. The couple themselves took a recording of Ava-Joy’s heartbeat and had it put into a bear to give them something of her to keep after she slips away. Hayley said: “Every night I have a bath with Ava-Joy. She tends to kick and move around more when I bathe. “I make it as fun as possible, I use bath bombs or I read or sing to her. “All the stuff a mother might do when the baby is born, I am doing it now.” Hayley hopes her story will also encourage other mums who receive a fatal diagnosis to complete their pregnancy to help other desperately ill tots.

The couple will not shield their three children from the tragedy.

They plan to take out Ava-Joy’s memory box on special occasions so the family can talk about her and remember her.

“Ava-Joy, no matter what, will always be my daughter and she will always be my children’s little sister,” Hayley said.

The couple are also trying to raise money through internet crowdfunding to pay for a special funeral.

Hayley said: “I am not going to be able to give her a birthday or Christmas present so the funeral is really important.

“We want to say goodbye in a way that mirrors just how special and loved she truly is to us.”