Decision over Lyla’s tumour
A SERIOUS RISK TO HER HEALTH
becoming brain dead over the years, because they don’t know what effect the seizures are having on her brain.
“The second option is to risk doing another operation, but this one is dissecting some of her brain stem away, so it’s very risky as your brain stem controls all your vital things like breathing.”
Paul added: “We’ve been positive right the way through this journey, we’ve always found a positive, but we’re starting to lose that positivity because the two options we’ve got are just awful.
“She’s been to hospital to have a scan on her heart to see if there’s any problems with that, and we’re going to Bristol for a fresh team to have a look, but really I think it’s just a case of ruling things out.
“We’re clutching really.”
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Despite her own challenges, Lyla has always been passionate about helping others and in 2018 she received a Child of Courage Award from our sister paper the Chronicle for her bravery.
After winning, Lyla felt that poorly children everywhere should receive a certificate for being brave, and set up the “Lyla & Lilley’s Stars” project with her sister Lilley.
The sisters now regularly send out bravery certificates to children with illnesses around the world and in acknowledgement of her efforts Lyla was recently presented with an Inspirational Child award from Prince Harry at the prestigious Well Child Awards.
Lyla’s bravery and passion to help others has inspired many people around her but no one more so than proud parents Paul and Kirsty. As a result, former army instructor Paul has raised more than £2,000 for the Great North Children’s Hospital Foundation to say thank you to staff at the Great North Children’s Hospital for saving his little girl’s life “over and over again”.
Joined by Champion Boxer Tommy Ward, Paul ran 20 miles from his home in Durham to the Great North Children’s Hospital in Newcastle to raise money and buy toys for Ward 1B.
Paul added: “No matter what’s thrown at Lyla she just gets on with it and is always thinking of others.
“We do a lot with her because I don’t want her growing up thinking she can’t do things because of what’s happened to her.
“We want to make as many memories as possible.”
You can support Paul https://bit.ly/2wvswgy
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