The Courier & Advertiser (Perth and Perthshire Edition)
Fearless Parkinson’s campaigner and group co-ordinator Mel Ballantyne, 80
The Parkinson’s community in Fife has been saddened by the loss of one of its most active members, Mel Ballantyne, of Craigrothie, near Cupar, who has died at the age of 80.
Mel lived with Parkinson’s for more than 34 years following his diagnosis at the age of 46.
He and his wife Jean set themselves the task of using their experiences to improve the lives of other people with Parkinson’s right from the start.
Friends said Mel’s kindness and his determination to change things for the better informed everything they did.
Mel was committed to making sure that health and care workers, decisionmakers and the public truly understood Parkinson’s.
He believed it was essential that people appreciated the reality of living with an incurable and progressive brain condition, and he was candid about sharing the impact of Parkinson’s on his life and that of his family.
Mel’s achievements include co-ordinating local groups to support people with Parkinson’s and their families, first in Solihull, and from 1992 until 2011 in Fife; persuading NHS Fife to appoint the board’s first two Parkinson’s nurses; helping to shape Parkinson’s UK’s Get it on Time Campaign to make sure that people with Parkinson’s get their essential medication on time, every time, when they are in hospital; and inspiring Jean to volunteer as a Parkinson’s UK educator in local care homes.
Katherine Crawford, director of services of Parkinson’s UK, said: “I was lucky to work closely with Mel and Jean when I first joined the charity as a community support worker in Fife.
“Mel will be terribly missed across the Parkinson’s community in Fife, Scotland and across the UK. He was a kind man whose infectious sense of humour drew people to him.
“That, coupled with a formidable tenacity, inspired people to work with him to improve life for everyone living with Parkinson’s.”
Mel was made an honorary life member of Parkinson’s UK – then the Parkinson’s Disease Society – in 2007.
At the time, Steve Ford, chief executive, said: “We cannot thank people like Mel enough. As a charity so dependent on and indebted to its supporters, we are extremely grateful for all his hard work, tireless enthusiasm and generosity of spirit.”
Mel was determined that other people should draw benefit from his worst experiences, so it is fitting that he achieved his wish of donating his brain to the Parkinson’s UK Brain Bank.
He is survived by Jean and son David.