Online film tells of inspiring family
THE inspiring story of a Skye family’s experience of cystic fibrosis is highlighted in an online film.
The Macqueen family from near Portree featured in the main film created for The Leanne Fund by MG ALBA last month, but a more detailed account of their story is now also online.
Liam, 12, and his two-yearold sister Aila both have cystic fibrosis and the film outlines how keeping healthy fits into their busy lives.
Mary, their mother, talks about some of the challenges of family life and how The Leanne Fund has helped them to provide special treats for the children. She said: ‘Cystic fibrosis is an invisible illness and you would never suspect there was anything wrong with them - and I’m grateful for that - but I don’t think people understand how much hard work it takes to keep them looking so well and keeping so well. It’s a very strict routine that you have to stick to.’
Liam, a keen shinty player, explains his daily routine of medication and physiotherapy, while Mary explains what that means for Aila, who is too young to take tablets.
‘We just want them to lead a full and happy life and get on with things just as their friends would do and we want them to be as active as they can be,’ she said.
‘It is great that there is lots of fundraising for research but The Leanne Fund gives us something for fun and to make things easier which is really nice.’
View the film at https:// www. youtube. com/ watch? v=5uXwYPLiYHY and the main film which features the family and others across the Highlands and Islands at http:// www. theleannefund. co. uk/ news1/ watch-our-new- cystic-fibrosisawareness-film