On­line film tells of in­spir­ing fam­ily

The Oban Times - - News -

THE in­spir­ing story of a Skye fam­ily’s ex­pe­ri­ence of cys­tic fi­bro­sis is high­lighted in an on­line film.

The Macqueen fam­ily from near Portree fea­tured in the main film cre­ated for The Leanne Fund by MG ALBA last month, but a more de­tailed ac­count of their story is now also on­line.

Liam, 12, and his two-yearold sis­ter Aila both have cys­tic fi­bro­sis and the film out­lines how keep­ing healthy fits into their busy lives.

Mary, their mother, talks about some of the chal­lenges of fam­ily life and how The Leanne Fund has helped them to pro­vide spe­cial treats for the chil­dren. She said: ‘Cys­tic fi­bro­sis is an in­vis­i­ble ill­ness and you would never sus­pect there was any­thing wrong with them - and I’m grate­ful for that - but I don’t think peo­ple un­der­stand how much hard work it takes to keep them look­ing so well and keep­ing so well. It’s a very strict rou­tine that you have to stick to.’

Liam, a keen shinty player, ex­plains his daily rou­tine of med­i­ca­tion and phys­io­ther­apy, while Mary ex­plains what that means for Aila, who is too young to take tablets.

‘We just want them to lead a full and happy life and get on with things just as their friends would do and we want them to be as ac­tive as they can be,’ she said.

‘It is great that there is lots of fundrais­ing for re­search but The Leanne Fund gives us some­thing for fun and to make things eas­ier which is re­ally nice.’

View the film at https:// www. youtube. com/ watch? v=5uXwYPLiYHY and the main film which fea­tures the fam­ily and oth­ers across the High­lands and Is­lands at http:// www. the­lean­nefund. co. uk/ news1/ watch-our-new- cys­tic-fi­bro­si­saware­ness-film

Mary Macqueen, left, with Aila, ex­plains the fam­ily’s strict regime which lets Liam and his sis­ter lead nor­mal lives.

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