The Press and Journal (Inverness, Highlands, and Islands)
New study into MND treatment
Psychological support could enhance the quality of life of patients with motor neurone disease (MND), a new study has found. Treatments aimed at improving the psychological wellbeing of those with the condition are “crucial” in the absence of a cure, researchers said.
MND affects the brain and nerves, with patients eventually losing the ability to move, speak, swallow and breathe.
Current treatments include physiotherapy to maintain muscle strength and a drug called riluzole, which can slow the progression of the disease.
The Commend study, led by a team from the University of Sheffield and University College London (UCL), explored whether acceptance and commitment therapy (ACT) could boost the health of people with MND.
ACT is a type of psychotherapy that combines behavioural therapy with mindfulness, encouraging patients to accept difficult thoughts and feelings rather than avoid them.
Chris McDermott, a professor of translational neurology at the University of Sheffield and joint lead of the trial, said: “We desperately need treatments to slow down and stop MND.
“In a year when several large drug trials have already reported negative results we are reminded what a huge and difficult challenge that is.
“While we work incredibly hard to look for a cure, it is essential that we support those living with MND now.”
Commend began in 2019 and involved 191 people across 16 MND centres in the UK – randomly assigned to have their usual care or usual care plus ACT.
The results, published in The Lancet, showed ACT, when combined with usual care, was “clinically effective for maintaining or improving quality of life” in patients with MND.
Researchers said: “As further evidence emerges confirming these findings, healthcare providers should consider how access to ACT, adapted for the specific needs of people with motor neurone disease, could be provided within motor neurone disease clinical services.”
According to the MND Association, the condition can affect up to 5,000 adults in the UK at any one time.
Chris Bennett, head of regional services at the charity, said: “We know many people with MND seek help to cope with the psychological impact of the disease but often this isn’t available or not in a timely way.
“The Commend study shows psychological support can be effective in improving quality of life and that there is clear clinical benefit in acceptance commitment therapy specifically.
“It is therefore important consideration is given to offering psychological support, such as ACT, within the standard care package to all those who may benefit from it.”