Mother reveals five-year-old son given ketamine for seizures
A mother-of-three campaigning to have medicinal cannabis made available on the NHS to treat her five-year-old son’s epilepsy seizures has revealed that doctors gave him ketamine.
Ahead of a planned protest outside the Scottish Parliament tomorrow, Karen Gray told The Scotsman that young Murray had been prescribed the drug famed as a horse tranquiliser.
Doctors at the Royal Hospital for Sick Children in Edinburgh where he receives treatment for his 600 seizures a day planned to try him on ketamine again in an effort to end his nightmare.
Mrs Gray, from Edinburgh, said it was ridiculous that she cannotgetmedicinalcannabis on the NHS but they will give him ketamine. She handed in a 170,000 signature petition to Downing Street last month with the aim of triggering a parliamentary debate that would see the drug made available on the NHS.
Mrs Gray said: “What’s happening is he gets IV treatment but his body seems to be getting used to that so it’s just not helping him. So, the only other option available to Murray when he goes into this phase of seizures is to try him again with ketamine – which is the horse tranquiliser.
“He was on it before three months ago, they gave him 1.65mls and he took it for five days but it did nothing for him. The neurologists are genuinely wanting to give him ketamine and he’s had it before.
“I researched it and in Belgium they are treating some people who have epilepsy with ketamine and apparently it can help. But, I think with Murray, nothing else is helping him so the doctors are trying different things.
“He got all of the side effects and none of the perceived benefits with ketamine – it never calmed his brain and didn’t stop his seizures. He was very drowsy after taking it.”
The youngster, who is a P1 pupil at Clermiston Primary School in Edinburgh, was diagnosed with Myoclonic Astatic Epilepsy aged two.
Scottish Lib Dems MP Chrisaged tine Jardine, said: “It is ridiculous that there is a medicine out there that could alleviate Murray’s condition and the conditions of many others across the UK.
“Instead of one Class B drug he has been prescribed another class B drug. The Conservative government should listen to the clear public view, expressed in support for Karen Gray’s petition, that it’s time for change. I am pushing for a parliamentary debate to pursue this change.”
Mrs Gray recently met with health secretary Shona Robison, who is looking into the potential availability of a cannabinoid medicine created by UK company GW Pharmaceuticals called Epidiolex.
A Scottish Government spokesperson said: “Shona Robison had a very productive meeting with Ms Gray recently and was able to get a greater understanding of the difficulties she and her son face.”
Tracey Gillies, medical director, NHS Lothian, said: “Ketamine is only prescribed in rare cases for children with severe epilepsy where other rescue medications have not been sufficiently effective. Ketamine is considered a rescue medication and is only prescribed in a very small dose and as a temporary measure (generally no more than five days) until regular medications or special diet have become effective. It’s also only used in specialist centres.”
“He got all of the side effects and none of the perceived benefits with ketamine – it never calmed his brain and didn’t stop his seizures. He was very drowsy after taking it”