‘We don’t know how long Sophia has left so we’re holding on to hope and living in the moment’

AT just five years old, Sophia Scott is probably the youngest person in Scotland facing the cruel reality of losing her memory.

She has Sanfilippo syndrome – nicknamed childhood Alzheimer’s – a rare genetic condition that means her mind and body will deteriorate.

Two years on from her diagnosis, her parents are in a race against time to find a cure.

And they’re hoping 2017 will not only be a year to make memories, but hold the key to saving their daughter before the terminal illness takes hold…