What Happens To The Results Of Your DNA Test When You Die?

Many of those we spoke to talked about legacy – how they were researching their tree for their children and grandchildren. DNA information is now part of that legacy.

But what happens to someone’s DNA information and online profiles when they die? Many respondents discussed managing data for relatives who had died recently, and not being sure what to do with the information and associated records. How is their relative’s data going to be stored, and where? One researcher worked out a system with her sister: “We know we’re not going to be here forever.”

The original records family historians rely on are preserved in central archives, but DNA data is scattered across various websites and databases. Some services allow for a nominated ‘succession’ person, but many respondents were still concerned. One said: “My mother-in-law passed away a couple of weeks ago. I’ve got her DNA online. I’m using it like she wanted me to use it, but should there be some sort of ethics around it now that she’s passed?” Another said: “I feel I’ve inherited her DNA to look after now.” We asked Ancestry for its policy: “Our customers maintain ownership and control over their own data at all times. If you request that Ancestry deletes your DNA data, we will delete all genetic information within 30 days. If a person has passed away, an authorised family member can contact us and, if they wish, we will remove the deceased’s data on their behalf.”