Dad with Mar­fan has heart con­di­tion

Car­ing

Austin American-Statesman - - BUSINESS - B ash­ley lan­dis / FOR amer­i­can-states­man Con­tact Rick Cantu at 4453953. Twit­ter: @Rick­yprep

of the Austin Amer­i­canS­tates­man’s Sea­son for Car­ing pro­gram, which helps 12 fea­tured fam­i­lies and hun­dreds of other fam­i­lies like them through area non­profit agen­cies.

As of Wed­nes­day, Sea­son for Car­ing has raised more than $153,000 this year in mon­e­tary do­na­tions. Many in­di­vid­u­als and busi­nesses also have reached out by do­nat­ing goods and ser­vices.

One of the rea­sons the Far­rells wanted to be part of Sea­son for Car­ing was for peo­ple to know about Mar­fan syn­drome. That’s also what mo­ti­vated Aubrey to talk to her class.

More than 50,000 peo­ple in the United States are be­lieved to have the dis­or­der that af­fects sev­eral or­gans, in­clud­ing the eyes, car­dio­vas­cu­lar sys­tem and skele­tal sys­tem.

Aus­ti­nite Michelle Carl­son and her fam­ily know what it’s like to have to ex­plain why you are so tall. Carl­son, who’s 6-foot-3, her 17-year-old son, who’s 6-foot-7, and her 19-year-old daugh­ter, who’s 6-foot-2, have Mar­fan. Carl­son started her pa­jama busi­ness Long Night’s Sleep when she was hav­ing to sew pa­ja­mas to fit her kids. She is giv­ing Aubrey a pair of sock mon­key pa­ja­mas that will fit her frame.

A tai­lor also has agreed to al­ter any clothes Aubrey re­ceives. Aubrey wears a girl’s size 16 for the length but the waist has to be taken in to not fall off her thin frame.

One of the fam­ily’s big­gest con­cerns was their mount­ing med­i­cal bills for both Tim Far­rell and Aubrey. A fi­nan­cial plan­ner, who wants to be anony­mous, will soon be help­ing them.

Aubrey still needs bed­room fur­ni­ture.

She needs help from a pro­fes­sional math tu­tor or a tu­tor­ing cen­ter. She also would like pi­ano lessons. The fam­ily would love to take a va­ca­tion.

They need a tele­phone land line for a mon­i­tor­ing ser­vice that checks Tim Far­rell’s heart de­fib­ril­la­tor. He also can­not drive to work and needs taxi vouch­ers.

To find out more about the Far­rell fam­ily or to do­nate an item on their wish list, con­tact Won­ders & Wor­ries at 329-5757 or www.won­der­sand­wor­ries.org.

Tim Far­rell, who has Mar­fan syn­drome, em­braces his wife, Suzanne.

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