Chicago Sun-Times

Lawmakers have no place in difficult family decisions

- Cheryl Axelrod, Wilmette

Recently, the U. S. House passed a bill that would ban abortions after 20 weeks of pregnancy, co- sponsored by Dan Lipinski, a Democrat from Illinois’ 3rd District. As an obstetrici­an with intimate experience with this issue, I know that this ill- informed bill inserts government where we need it least: between patients, families, and doctors at the cusp of life and death.

I grew up Catholic and very spiritual. I always had difference­s with the Church, but still I was drawn to the passion for social justice found there. During residency, I had declined to perform abortions, but my compassion and understand­ing grew toward these women and families facing what seemed to be nearly impossible situations.

My heart opened as I saw how devastatin­g and complicate­d it can be when you get down to the real-life-individual level. After getting married, I was lucky enough to get pregnant easily, and I couldn’t wait to meet my first child and be a mom. During a routine checkup, we found out that my first son— my loved and wanted and waited for child— would be born with a cloacal exstrophy. His lower abdominal wall had not formed correctly. Instead, a mass of organs as big as his head had formed between his little legs.

In the ultrasound, I could barely see his legs and his tiny feet looked already clubbed. His spinal cord was tethered; he would never walk or have a functionin­g bladder or bowels. A week later, the situation worsened. Two additional complicati­ons had developed— his kidneys weren’t working, and therefore his lungs wouldn’t develop. If I carried him to term, he would suffocate upon delivery.

After eagerly preparing for our child, my husband and I agreed that as his parents, our responsibi­lity was to save him terrible and futile suffering. At 13 weeks and 4 days, we ended the pregnancy Ultimately, ending this pregnancy was the most compassion­ate decision— and the right decision for our family. Our rabbi— my husband is Jewish, and our family is devoutly interfaith— came over that night as we said Kaddish, the Hebrew prayer of mourning. We lit a yartzheit candle for our son and prayed as we named him Thomas. We had his remains cremated, and a few months later on Mother’s Day, we scattered his ashes over the river by our local park.

Only 1.5 percent of all abortions are after 20 weeks of pregnancy. The most common time, far and away, is prior to 12 weeks. Past that, the reasons for ending a pregnancy are usually that either the women were somehow prevented from seeking care sooner ( by legal, financial or geographic restrictio­ns) or families have been given the devastatin­g news that their beloved child is sick, sometimes fatally so.

As an obstetrici­an, I have given patients this news and watched their world turn upside down, as mine did. I have held sobbing women, prayed with weeping husbands and quietly offered my presence to their grief. Never have I seen a patient make the decision to end a pregnancy flippantly. Even for the best of reasons, this decision haunts us. But not making that decision would have haunted me even more. There is nowhere in this equation for lawmakers to insert themselves.

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