Judge: Baby Charlie will be sent to hospice
Critically ill British baby will be transferred to a hospice and taken off life support unless his parents and a hospital strike deal.
Critically ill baby Charlie Gard will be transferred to a hospice and taken off life support unless his parents and a hospital agree on a plan that could potentially keep the child alive for a bit longer, a British judge ruled Wednesday.
High Court judge Nicholas Francis gave 11-monthold Charlie’s parents and the hospital that has been treating him until noon today to come to terms on an end-oflife care plan for the infant’s final hours or days.
The baby suffers from a rare genetic disease, mitochondrial depletion syndrome, which has caused brain damage and left him unable to breathe unaided. Recent tests found Charlie has irreversible muscular damage.
“It is in Charlie’s best interests to be moved to a hospice and for him at that point to be moved to a palliative care regime only,” the judge said as a medical and legal battle that has drawn international attention nears a wrenching conclusion.
The parents, Connie Yates and Chris Gard, spent months trying to persuade Great Ormond Street Hospital to let Charlie go to the United States for experimental treatment. Despite backing from President Donald Trump and Pope Francis, they gave up their fight on Monday, acknowledging that the window of opportunity to help him had closed.
On Tuesday, they said they hoped to bring their son, whose first birthday is next week, home to die. Francis said Charlie’s mother and father now accept that the only options for their son “are the hospital or the hospice.”
Today’s deadline is meant to yield a plan for what happens after the baby is transferred to a hospice. The parents want him kept on his ventilator for a time. The hospital, in fighting the parents’ earlier effort to secure experimental treatment, had indicated that it was responsible for sparing Charlie unnecessary pain.
Francis said if the parties do not reach an agreement, Charlie will be taken to hospice and the ventilation system keeping him alive will be turned off. He issued an order barring publication of the name of the hospice and the date when Charlie is taken there.
The judge said it was a “very, very sad conclusion.”