Milwaukee Journal Sentinel

‘Life-changing’ learning

What to know about accommodat­ions for neurodiver­gent students

- Amy Schwabe USA TODAY NETWORK - Wisconsin

During her son Ben’s time in school, Alison Peetz became an expert in advocating for his needs. Ben — who is now an adult — is autistic and has a language processing disorder.

Peetz described Ben’s school days as “emotionall­y, physically and spirituall­y exhausting” because for him, it was “as if he suddenly went to a foreign country where he couldn’t speak the language and didn’t know the customs, where he couldn’t understand what people were saying and he was constantly getting in trouble for doing the wrong thing.”

His neurodiver­gent diagnoses required special education services and accommodat­ions throughout school, some of which changed over the years and some of which received pushback from school staff.

Here’s what to know about the accommodat­ions that are required for neurodiver­gent kids in Wisconsin, and the lessons Peetz learned as she navigated the educationa­l system to help her son get the accommodat­ions he needed.

Accommodat­ions for neurodiver­gent students are required by multiple laws

Under the federal Individual­s with Disabiliti­es Education Act, students ages 3 through 12th grade with disabiliti­es are entitled to an Individual­ized Education Program. The Wisconsin Department of Public Instructio­n defines an IEP as “a plan that identifies a student’s educationa­l needs, contains learning goals based on the student’s needs, and describes the services a student will receive in order to progress towards learning goals.”

The Wisconsin Legislatur­e’s administra­tive codes identify 11 “areas of impairment” that qualify a student as disabled and eligible to receive services:

● intellectu­al disability

● orthopedic impairment

● blind and visual impairment

● deaf and hard of hearing

● speech or language impairment

● specific learning disability

● emotional behavioral disability

● autism

● traumatic brain injury

● other health impairment

● significant developmen­tal delay Each area has several criteria, traits and tests to take into considerat­ion for diagnosis. Although neurodiver­gent students could fall into a number of these categories, the most likely would be speech or language impairment; specific learning disability; emotional behavioral disability, autism and significant developmen­tal delay.

Students may also have a 504 plan as part of the Rehabilita­tion Act and the Americans with Disabiliti­es Act, which require school districts to provide a “free and appropriat­e public education” to students who have a “qualified disability.”

For both IEPs and 504 plans, the student must be evaluated by a team of people, which usually consists of the student’s parents, at least one of the student’s regular education teachers, specialist­s and other relevant school staff. A 504 plan will include the accommodat­ions the student is entitled to, while an IEP will be more detailed, specifying learning goals, benchmarks to achieve, accommodat­ions needed and specific plans to achieve the student’s learning goals.

Students’ needs, strengths should be the starting point for determinin­g accommodat­ions

Peetz’s advocacy taught her that the quest for accommodat­ions should always start with an evaluation of the student’s needs and strengths, followed by an analysis of how the environmen­t is set up (or not set up) to help the student achieve their goals. Only then should accommodat­ions be decided upon. But Peetz found that districts sometimes do the reverse.

“I learned that districts often start with the technology they have available, telling parents the things they have and that they can try out,”

Peetz said. “It’s like they’re trying to retrofit a tool they’re familiar with to the student.”

And a student’s specific life goals, strengths and challenges should also be the starting point for the learning benchmarks set out in an IEP.

Peetz said Ben’s behaviors were often the focus when he was younger, but his strengths weren’t appreciate­d. When he started attending workshops at Islands of Brilliance — a Milwaukee organizati­on that pairs autistic students with mentors to create technology-based art — he was celebrated for his abilities.

After learning how to use tools like Adobe Illustrato­r and Photoshop at Islands of Brilliance, Ben was able to leverage his skills — with the support of art teachers at his school — to earn industry certification in some of the digital tools. Those accomplish­ments and goals toward aggregatin­g a profession­al portfolio were included in his IEP.

“Ben had an excellent teacher for digital photograph­y and graphic design who could see what Ben’s needs were and follow the IEP,” Peetz said. “And that, combined with the experience he had from Islands of Brilliance, that really helped him blossom in his area of strength. It was life-changing for him.”

Common accommodat­ions include therapy, learning aids and physical objects

Accommodat­ions should be individual, specific and tailored to achieve the learning goals determined by the student and their advocates. And, while needed accommodat­ions often change during a student’s time in school, there shouldn’t be an assumption that the student should “grow out of” needing accommodat­ions. Neurodiver­gent people will often need accommodat­ions to accomplish their goals throughout their entire lives, and there’s nothing wrong with that.

Some neurodiver­gent students will require specialist­s to provide different types of therapy, such as speech and language, occupation­al and physical therapy. Some will also require a teacher’s aide to help them in their classes.

There are also assistive technology tools that can help students — things like text-to-speech software, closed captioning and transcript­ion services.

Neurodiver­gent students are often accommodat­ed with extra time to take tests, the flexibility to leave the room for brain breaks and the option to prove they’ve learned concepts through unconventi­onal assessment­s.

Physical items like yoga balls, fidget gadgets or standing desks can help neurodiver­gent students to focus when they have excess energy.

“When my son was younger, he always was using a Rubik’s Cube. At first, teachers thought it was a distractio­n until they realized that he was using it to self-regulate and get him to a place where he could quiet everything that was going on internally in his mind,” said Kristin Westmore, a Kettle Moraine mother of neurodiver­gent children. “They accommodat­ed him, and we accommodat­ed them by getting a Rubik’s Cube that we could oil so the clicking wouldn’t distract the other kids.”

Katie Berg, the statewide coordinato­r for the Supporting Neurodiver­se Students Profession­al Learning System, noted that sometimes, accommodat­ions can simply be understand­ing how neurodiver­gent children feel in different circumstan­ces and helping them to communicat­e in a comfortabl­e way.

“For example, eye contact is often seen as expected because it’s this social norm that neurotypic­al people understand as showing that someone is listening or paying attention,” Berg said. “But for a child with autism, it can be difficult to process a face and expression­s, and because of the cognitive load it takes to make eye contact, they’ll avoid it.

“In those situations, I explain to the child that people just want to see that they’re listening. So if you can’t make eye contact, that’s fine. But maybe we can think of a more comfortabl­e nonverbal thing, like looking at their shoulder, that will show the other person you’re listening.”

Some of the accommodat­ions Peetz requested were considered unconventi­onal. For example, Peetz requested that Ben’s IEP include a statement that teachers should watch two videos that explained his language processing disorder, why it makes it difficult for him to learn and gave suggestion­s for supports for students who have similar diagnoses.

“When I first started asking for that to be required viewing for anyone who worked with him, I was told it couldn’t go in the IEP because they couldn’t require teachers to watch a video,” Peetz said. “But that was when I was a fledgling advocate. The longer he was in school, the more successful I became as his advocate.”

Whom to contact to start the IEP or 504 plan process

Parents of children with a disability should talk to their children’s teachers, school administra­tors or contact their district to talk about accommodat­ions.

The DPI website has resources to learn more about IEPs, special education in Wisconsin schools and ways to support neurodiver­se students.

The Wisconsin Statewide Parent Educator Initiative has resources to support parents through the IEP process.

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 ?? SENTINEL MIKE DE SISTI/MILWAUKEE JOURNAL ?? Alison Peetz and her son, Ben, sit before a 1000-piece puzzle they completed at their home in Brown Deer.
SENTINEL MIKE DE SISTI/MILWAUKEE JOURNAL Alison Peetz and her son, Ben, sit before a 1000-piece puzzle they completed at their home in Brown Deer.
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