Orlando Sentinel

Visa woes hold up life-saving transplant

Leukemia patient’s sister barred from traveling to U.S. for stem-cell treatment

- By Kyle Swenson

When phantom chills began regularly sweeping over Helen Huynh, her family told her not to worry. You’re healthy, they said.

At first doctors could find nothing wrong with the 60-year-old woman. She and her husband, Vien, who live in Garden Grove, Calif., continued to put in two hours every day at their local gym. She kept up her gardening.

But she still fretted about her health.

“We always thought she was being a hypochondr­iac,” said her oldest daughter, Yvonne AiVan Murray.

The Vietnam-born mother of three grown daughters repeatedly returned to the doctor. A low white blood cell count led to further examinatio­ns, and on Valentine’s Day 2017, the physicians announced a bombshell diagnosis: Helen had acute myeloid leukemia.

The following months proved to be a grinding cycle of hospital stays and chemothera­py and remission.

There was hope. Doctors told Helen’s family the patient needed a life-saving stem cell transplant. The procedure required as close of a genetic match to Helen as possible. Her three sisters — all living in Vietnam — were the best bet. Doctors could proceed if they found a 70 percent match. Helen’s youngest sibling, Thuy Nguyen, was a rare 100 percent match.

“We were all like, ‘Hallelujah! All we have to do is fly her here,’ ” Murray explained. “And that’s when everything fell apart.”

In the last year, Helen’s sister has repeatedly applied for a visa to travel to the United States for the medical procedure. The applicatio­n has been denied every time thanks to snares in the immigratio­n process. The medical emergency comes at a time when any border crossing is hot-wired with politics, but Helen’s family here — all of whom are U.S. citizens — say their request is a simple matter of life or death.

“We feel betrayed,” Murray said. “We feel like we’re doing everything we can, we can show that we are Americans, yet there is only one thing preventing us from getting the stem cell transplant, and that’s the U.S. government.”

That betrayal burns hotter due to the family’s deep feeling for their adopted homeland.

Vien Huynh was an officer in the South Vietnamese army and fought alongside American troops in the country’s bloody struggle in the 1960s and 1970s. After the U.S. pulled out of the country, the victorious North Vietnamese government shipped him to a brutal re-education camp in the country’s north. He stayed for eight years.

After his release, he met and married Helen. According to her daughter, Vien’s wife’s life was similarly marked by the country’s conflict. Murray grew up hearing stories from her mother about falling asleep at night to gunfire in the distance. Both Murray and her sister Sharon were born in Vietnam, but America was always on the family’s horizon.

“My earliest memory is with my dad, when I was three or four,” Murray said. “He took me to this store for a globe, and he pointed to where America was, and said, ‘This is America, this is where freedom is, and one day we are going to live there.’ ”

Because of a U.S. government program offering former South Vietnamese officials and officers the opportunit­y to move to the U.S., the family relocated to California in 1991. The couple’s third daughter, Tiffany, who suffers from Down syndrome, was born in 1992.

To support the family, Vien delivered pizzas, newspapers and passed out coupons at Disneyland. Helen raised the children while collecting recyclable­s for extra money and helping with Vien’s work. Her kitchen was always filled with Vietnamese home cooking.

“She is such a generous person,” Murray said. “She would always make sure everyone was fed, even when we didn’t have a lot. There was no question.”

All five family members eventually gained U.S. citizenshi­p. Helen’s two oldest daughters married and started their own families. She remained, however, Tiffany’s primary caregiver, right up to her sickness.

Following the diagnosis, Helen’s sister, Thuy Nguyen, went to interview with U.S. officials at the embassy in Ho Chi Minh City for a visa.

According to Murray, the officials were mainly interested in whether Nguyen had been out of Vietnam before.

When they learned she had not, they quickly ended the conversati­on. In a denial letter, the consulate stated Nguyen had failed to offer necessary evidence that she would leave America once her visa was up.

“Evidence may come in many forms, but when considered together, it must be enough for the interviewi­ng officer to conclude that the applicant’s overall circumstan­ces, including social, family, economic and other ties abroad, will compel him or her to leave the United States at the end of the temporary stay,” the letter stated.

“It’s stupid,” Murray said. “They are looking at you and want to see you went out of your country and came back. But in my aunt’s case, she’s had no interest in visiting other countries.”

Nguyen — who owns businesses and has a family in Vietnam — applied again with proof she was financiall­y stable in her home country. “She’s not poor, but that’s the mentality that these interviewe­rs have: if you are from a less developed country, you won’t leave,” Murray said.

The family also filed letters from Helen’s doctors urging government officials to grant the visa.

“This patient will benefit from a life-saving procedure utilizing stem cells,” a physician from the University of California at Irvine Medical Center wrote in an August 2017 letter. “For humanitari­an reasons, we are requesting the patient’s sister ... be granted a Temporary Visa to enter the United States so that she can assist in donating her stem cells to save our patient’s life.”

“This is a very urgent matter,” another doctor from City of Hope Medical Center added in a separate June 2017 letter. “(T)ime is of the essence.”

Two additional visa requests were denied. As a last resort, the family has hired an immigratio­n attorney to file for humanitari­an parole, a Hail Mary petition for emergency entry into the country. Murray told The Post as of Monday the government was still considerin­g the applicatio­n. They have also appealed to politician­s.

To help with both the mounting legal and medical bills, the family has started up a GoFundMe page for donations. As of Friday, the campaihn had raised just over $7000.

But doctors have also told Helen’s family to brace for the inevitable. Helen is currently in the hospital. She has not been able to eat on her own for three weeks. “Nothing is for sure right now,” Murray said. “Honestly, at this point, we’re so frustrated. If my aunt was approved the first time, my mom would be well.”

 ?? YVONNE AIVAN MURRAY ?? Helen Huynh, center, who has leukemia, is seen surrounded by her family. Doctors want to treat her with stem cells.
YVONNE AIVAN MURRAY Helen Huynh, center, who has leukemia, is seen surrounded by her family. Doctors want to treat her with stem cells.

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