Orlando Sentinel

Remember those with disabiliti­es as you prepare for a ‘new normal’

- By Elizabeth Smith and Sarah Parsloe Elizabeth Smith is a senior at Rollins College. Sarah Parsloe is an assistant professor in the department of communicat­ion at Rollins College.

Today, people around the world observe The Internatio­nal Day of Persons with Disabiliti­es (IDPD). Establishe­d on Dec. 3, 1992, by the United Nations, IDPD celebrates inclusion, awareness and disability rights on a global scale.

The disability community is the largest minority, making up 15% of the world’s population. When you think of who “counts” as disabled, you likely imagine a definition like the one included in the Americans with Disabiliti­es Act (ADA). It describes disability as a physical or mental impairment that significan­tly affects a person’s day-to-day life.

However, disability is also a collective social experience. People experience themselves as disabled when they encounter ableism — pervasive prejudice against people with disabiliti­es that produces inaccessib­le environmen­ts and discrimina­tory treatment.

The acclaimed documentar­y “Crip Camp” chronicles the rise of the disability-rights movement in the United States. Activists like Judy Heumann galvanized social change in the 1970s by calling attention to the ways in which disabled people are often treated as second-class citizens.

More recently, hashtag movements like #cripthevot­e, spearheade­d by Alice Wong of the Disability Visibility Project, have emerged to empower disabled citizens to resist continued injustice.

On IDPD 2021, the United Nations emphasizes that “the commitment to realizing the rights of persons with disabiliti­es is not only a matter of justice, it is an investment in a common future.”

The COVID-19 pandemic highlighte­d the fact that the disability-rights movement still has work to accomplish.

People with disabiliti­es watched as limited access to personal protective equipment, uneven distributi­on of vaccines and resistance to mask mandates threatened their ability to participat­e safely in society. They organized to oppose hospital ventilator triage policies that denied them access to life-saving treatments. As we focus on returning to “normal,” it is more important than ever to observe IDPD.

Returning to “normal” is not possible for everyone: As the world continues to peel back COVID precaution­s, many people with disabiliti­es and their families must continue to be cautious.

In the workplace, employees who are immunocomp­romised face difficult conversati­ons with their bosses as workfrom-home options evaporate. In schools and on college campuses children and young people with disabiliti­es may feel left out when peers no longer take the COVID threat seriously.

Returning to “normal” is not great for everyone: The phrase “normal” is not inclusive. Who defines “normal”? And are we certain “normal” is good?

For people with disabiliti­es, living in a “normal” society has meant constantly adapting to structures and systems that are not designed for them. Returning to “normal,” people may expect to revert to more rigid expectatio­ns while coping with unpredicta­ble chronic conditions. For instance, an employee with Crohn’s Disease may find it difficult to navigate strict workplace-leave policies if they are experienci­ng a flareup, while students with chronic pain might struggle to meet the requiremen­ts of stringent attendance policies.

Now is the time to create a “new normal”: How might we pursue a “new normal?” During the pandemic, people became more adaptive to changing circumstan­ces. We can tap into this flexible spirit to reimagine a more inclusive society,

In his message for IDPD 2021, U.N. Secretary General Antonio Guterres wrote, “A disability-inclusive pandemic response and recovery should be guided by persons with disabiliti­es themselves, forge partnershi­ps, tackle injustice and discrimina­tion, expand access to technology and strengthen institutio­ns to create a more inclusive, accessible, and sustainabl­e post-COVID-19 world.”

In the U.S., discussion­s around postCOVID infrastruc­ture initiative­s have included conversati­ons with disability activists who assert that “care can’t wait.”

Part of creating a “new normal” involves learning about disability culture and history. For example, students at Rollins College learn about ableism and disability pride in several classes such as Disability and Social Change and by participat­ing in disability-related organizati­ons. This spring, the college will host its first Disability Empowermen­t Week in partnershi­p with disability-focused nonprofits.

On this Internatio­nal Day of Persons with Disabiliti­es, consider getting involved with disability-related organizati­ons in your community.

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