Santa Fe New Mexican

Apparition­s appeared to mother near end of her lifetime

Those who work with the terminally ill call these examples of what is known as Nearing Death Awareness

- By Steven Petrow

Last summer, six months before my mother died, I walked into her bedroom, and she greeted me with tinny hello and a big smile. She then resumed a conversati­on with her mother — who had died in 1973.

“Where are you?” Mom asked, as though Grandma, a onetime Fifth Avenue milliner, was on one of her many European hat-buying junkets. As I stood there dumbstruck, Mom continued chatting — in a young girl’s voice, no less — for several more minutes.

Was this a reaction to medication, a sign of advancing dementia? Or was she preparing to “transition” to wherever she was going next?

As it turned out, my mother’s chat with a ghost was a signal that the end was inching closer. Those who work with the terminally ill, such as social workers and hospice caregivers, call these episodes or visions a manifestat­ion of what is known as Nearing Death Awareness.

“They are very common among dying patients in hospice situations,” Rebecca Valla, a psychiatri­st in Winston-Salem, N.C., who specialize­s in treating terminally ill patients, wrote in an email. “Those who are dying and seem to be in and out of this world and the ‘next’ one often find their deceased loved ones present, and they communicat­e with them. In many cases, the predecease­d loved ones seem [to the dying person] to be aiding them in their ‘transition’ to the next world.”

While family members are often clueless about this phenomenon, at least at the outset, a small 2014 study of hospice patients concluded that “most participan­ts” reported such visions and that as these people “approached death, comforting dreams/visions of the deceased became more prevalent.”

Jim May, a licensed clinical social worker in Durham, N.C., said that family members — and patients themselves — are frequently surprised by these deathbed visitors, often asking him to help them understand what is happening.

“I really try to encourage people, whether it’s a near-death experience or a hallucinat­ion, to just go with the flow,” May explained after I told him about my mom’s visitation­s. “Whatever they are experienci­ng is real to them.”

Valla agreed, telling me what not to do: “Minimize, dismiss or, worse, pathologiz­e these accounts, which is harmful and can be traumatic” to the dying person. In fact, May said, “most patients find the conversati­ons to be comforting.”

That certainly appeared to be the case with my mother, who had happy exchanges with several good friends, who, like my grandmothe­r, were no longer living.

Since Mom had already been diagnosed with advanced dementia, I originally thought her talks were a sign of worsening illness. In fact, current research posits that a combinatio­n of physiologi­cal, pharmacolo­gical and psychologi­cal explanatio­ns may be at play. That’s exactly what May’s handson experience of more than 14 years revealed to him, too.

May acknowledg­ed that it’s understand­ably “hard to have empirical evidence” for such episodes in patients, but that it’s important for family members and health profession­als to figure out how to respond.

One evening I made a simple dinner: spaghetti with a store-bought marinara sauce and a bright green leafy salad. Mom had pretty much stopped eating by this point, but she made a show of trying her best with this repast. It was heartbreak­ing to watch her try to spear the pasta, but she managed several hearty mouthfuls, saving room for a scoop of Sealtest vanilla ice cream.

After dinner, I helped her back to bed, where she exclaimed: “How did you know?” “How did I know what?” I asked. “That was exactly how I wanted my funeral to be. You invited all my favorite people, and the food was just what I would have ordered.”

She was beaming. Six weeks later, she passed — and pasta and salad were on the menu at her service.

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