Santa Fe New Mexican

Embracing your disability

- ROBERT STACK

“My son is a wonderful guy.” How many parents describe their kids like this? I would bet almost all of them. Especially when we are trying to chat up another parent who may have a single daughter with similar values and we are attempting to be a catalyst for a potential relationsh­ip.

Most parents want to become grandparen­ts. It is difficult if your child can’t seem to find the right match. Many of them use internet applicatio­ns. Full disclosure — I did after my divorce and it worked.

Starting new relationsh­ips from 25 years old to 65 years old is a challenge. Can you imagine a son with Down syndrome or intellectu­al or developmen­tal disabiliti­es?

I have met a lot of profession­als over the years who believe there should be a “special needs match” applicatio­n created solely for the use of people with developmen­tal disabiliti­es. I don’t think they need it. We live in an age where meeting people organicall­y doesn’t seem to happen very frequently anymore. Meeting people organicall­y is less the norm because we use our phones and laptops.

Many people with developmen­tal disabiliti­es do not seem to succumb to the almighty app. The people I know with developmen­tal disabiliti­es seem to forge relationsh­ips the oldfashion­ed way — organicall­y or through friends and families.

My nonprofit supports a man and a woman, who both have significan­t developmen­tal disabiliti­es and who were focused on eventually getting married. In spite of regulatory authoritie­s from state government creating unnecessar­y hurdles, the natural decision was reached, and they were allowed to pursue their dreams of being a married couple.

Despite both of them being hearing impaired, they communicat­ed loudly through sign language in the most beautiful and loving way. Even if they were only saying something like “pass the ketchup,” it seemed like something profound was being exchanged. With each communicat­ion sign, you could feel the love and tenderness between the both of them.

My personal experience is that many persons with developmen­tal disabiliti­es want to engage with each person they meet, share their stories and build a larger foundation and network, like we all do but seem to have forgotten how to do. Maybe those of us without disabiliti­es should take a lesson. Take a lesson in the manner in which people with developmen­tal disabiliti­es love and are wholly present in their interactio­ns. They have no hidden agenda and believe it or not most of the friends I meet do not have issues with self-esteem or self-image. They know how to embrace the spirit of love.

In my life, I have not witnessed a more pure and real love than that which I have seen in the people with developmen­tal disabiliti­es I’ve supported over the years. Theirs is unconditio­nal love not burdened by unrealisti­c expectatio­ns and devoid of drama. Maybe we should learn something from those we feel so necessary to protect.

Robert Stack is the founder, president and chief executive officer of Community Options Inc., a national nonprofit organizati­on that has been supporting people with developmen­tal disabiliti­es for 30 years.

Newspapers in English

Newspapers from United States