Florida can do more for those with Alzheimer’s and those who care for them

In August my wife passed away from Alzheimer’s, four days short of our 44th wedding anniversary.

It was devastating for our family, but in reality this disease took her long before that. I watched my wife, my soulmate, slowly disappear before my eyes.

Every aspect of our relationship was affected. The last time Jo was still able to whisper she told me, “I adore you.” I made a promise to her that I would do everything I could to prevent other families from having to endure the tragedies caused by this cruel disease.

Looking back at everything we went through, I wonder, is Florida still the retirement paradise it was supposed to be?

I was Jo’s caregiver for seven years, and I ignored my own health. My family and friends were concerned about me. I became disabled over 25 years ago, causing us to lose everything for which we had worked so hard. With a lack of income and resources, my options were limited.

For caregivers like me, in-home respite care and adult day programs are often out of reach due to cost. However, these kinds of services provide a needed mental and physical break from the demands of caregiving. While there are programs available to help, we must ensure everyone has access to this vital service no matter their financial situation.

When I could no longer care for my wife, our family had no choice but to relocate her to a nursing home. I put my trust in strangers to take care of someone with whom I’ve spent the majority of my life. It only makes sense that we would hold these communities to the highest of standards.

Anyone engaging with individuals who have Alzheimer’s must be properly trained to deal with the unique challenges that arise. So many of us unfortunately cannot say that is the case right now.

Finally, research and new treatments must be prioritized and made available to those living with Alzheimer’s. There are several new treatments on the horizon for FDA approval that have been shown to slow the progression of Alzheimer’s. A week, a month or a year without decline means more time with our loved ones.

Florida must become a leader in this space. Otherwise, what I went through with Jo will continue to be repeated.

My story is not unique; it is happening to thousands of families across our community. In fact, more than 42,000 people are living with Alzheimer’s in Broward County alone. Our elected officials must prioritize legislation that makes our state and country dementia-capable.

As a community, I know we can make a change in this crisis. I invite each of you to join me Saturday for a day of community action at the Walk to End Alzheimer’s Broward County at Nova Southeastern University. We will walk for our loved ones, support each other and raise funds for new treatments and, one day, a cure.

You can learn more about the walk at alz. org/Broward.

CHASITY MAYNARD/ORLANDO SENTINEL A child raises flowers representing those affected by Alzheimer’s disease during the Alzheimer’s Association 2021 Walk to End Alzheimer’s in downtown Orlando on Oct. 23, 2021.

By Ira Ziegelbaum