Parent's last wish: Let Charlie die at home

LONDON — Charlie Gard’s parents know their treasured son is about to die. They have one final wish — to take him home, put him to bed and kiss him goodbye. The mother of the critically ill baby at the center of an international medical and legal battle returned to London’s High Court on Tuesday, asking a judge to let the family take Charlie home for “a few days of tranquility” before his ventilator is disconnected and he is allowed to “slip away.” r months of court hearings over the 11-month-old baby’s fate that drew attention from Pope Francis, President Donald Trump and people around the world, discussion came down to the mundane, heart-wrenching details of ending a life: How could Charlie be transported from a hospital to his parents’ west London home? Could ventilation be maintained on the way? Would his ventilator fit through the front door of the house? Family lawyer Grant Armstrong in a written statement accused London’s Great Ormond Street Hospital, where Charlie is being treated, of putting obstacles in the way. The hospital’s lawyer, Katie Gollop, said Great Ormond Street wanted “above all” to fulfill the parents’ last wish, but also had to take the baby’s best interests into account. “The care plan must be safe, it must spare Charlie all pain and protect his dignity,” Gollop said. The hospital said Charlie would be able to die with dignity, surrounded by his family, in a hospice. Armstrong said Charlie’s parents regarded that as only “a notch better” than the hospital. At the end of the hearing attended by Charlie’s mother, Connie Yates, Judge Nicholas Francis said he feltahospice, rather than the family home, would be best. The judge said he would make his final ruling today. Charlie suffers from mitochondrial depletion syndrome, a rare genetic disease. He has brain damage and is unable to breathe unaided. His parents — Yates and her partner, Chris Gard — have battled for months to take Charlie to the United States for an experimental treatment they believed would improve his condition. Doctors at Great Ormond Street opposed that, saying it would not help and could cause Charlie more suffering. British courts and the European Court of Human Rights have all sided with Great Ormand Street, one of the world’s leading children’s hospitals, in its bid to remove life support and let Charlie die naturally. The case drew international attention after Charlie’s parents received support from the pope, Trump and some members of the U.S. Congress. U.S.-based activists flew to London to support Charlie’s parents, and the case became a flashpoint for opposing views on health-care funding, medical intervention, the role of the state and the rights of the child. On Monday, Charlie’s parents abandoned their battle for treatment, saying time had run out and the proposed therapy would no longer be effective because Charlie had severe and irreversible muscular damage. But the couple continues to insist Charlie could have been helped had he received the treatment sooner.

CONTRIBUTED BY FAMILY Connie Yates, with Chris Gard and their son, Charlie, asked a judge Tuesday to let the family take Charlie home for “a few days of tranquility” before his ventilator is disconnected and he is allowed to “slip away.”