The Atlanta Journal-Constitution
Bottleneck for U.S. virus response: The fax machine
‘The data is moving slower than the disease,’ one health official says.
Public health officials in Houston are struggling to keep up with one of the nation’s largest coronavirus outbreaks. They are desperate to trace cases and quarantine patients before they spread the virus to others. But first, they must negotiate with the office fax machine.
The machine at the Harris County Public Health department in Houston recently became overwhelmed when one laboratory sent a large batch of test results, spraying hundreds of pages all over the floor.
“Picture the image of hundreds of faxes coming through, and the machine just shooting out paper,” said Dr. Umair Shah, executive director of the department. The county has so far recorded more than 40,000 coronavirus cases.
Some doctors fax coronavirus tests to Shah’s personal number, too. Those papers are put in an envelope marked “confidential” and walked to the epidemiology department.
As hard as the United States works to control coronavirus, it keeps running into problems caused by its fragmented health system, a jumble of old and new technology, and data standards that do not meet epidemiologists’ needs. Public health officials and private laboratories have managed to expand testing to more than half a million performed daily, but they do not have a system that can smoothly handle that avalanche of results.
Health departments track the virus’s spread with a distinctly American patchwork: a reporting system in which some test results arrive via smooth data feeds but others come by phone, email, physical mail or fax, a technology retained because it complies with digital privacy standards for health information. These reports often come in duplicate, go to the wrong health department, or are missing crucial information such as a patient’s phone number or address.
The absence of a standard digital process is hampering case reporting and contact tracing, crucial to slowing the spread of the disease. Many labs joined the effort but had limited public health experience, increasing the confusion.
“From an operational standpoint, it makes things incredibly difficult,” Shah said. “The data is moving slower than the disease.”
The torrent of paper data led at least one health department to request additional forces. Washington state recently brought in 25 members of the National Guard to assist with manual data entry for results not reported electronically.
“The obsession with the number of tests obscures an important fundamental: What are we doing with all those tests?” said Dr. Thomas Frieden, a former director of the Centers for Disease Control and Prevention. “This is legitimately difficult stuff that every state is struggling with.”
Dr. Mark Escott, the interim health authority for the city of
Austin, Texas, and Travis County, said his office is receiving around 1,000 faxes a day, including duplicate results. Some faxes are meant for other jurisdictions, and many are missing crucial information needed for his office to investigate cases. Most such faxes in Austin are being sent to a computer, but they still need to be printed and manually entered into public health databases.
On average, his office is getting all the information it needs about a test result 11 days after the test is taken — far too late to make contact tracing worthwhile. He has been advising those in the area with virus symptoms to assume they are positive, since the tests take so long to come back.
“When we are receiving results back 14 days after the individual became symptomatic, it’s not useful at all,” Escott said.
Before the pandemic, nearly 90% of laboratory test results for diseases tracked by public health departments were transmitted digitally, according to the CDC. But the need for widespread coronavirus testing has brought many more players into the public health arena, including companies that usually run tests only for employers, and small clinics that usually test for diseases like the flu and strep throat. That has pushed up the share of lab tests coming to public health departments in other forms.
“There are standards that exist out there, but with the onslaught and the drastic increase in volume and the increase in the number of tests, they’re struggling to keep up,” said Jason Hall, who is the lead for the CDC’s Laboratory
Reporting Working Group.
Nationally, about 80% of coronavirus test results are missing demographic information, and half do not have addresses, according to Janet Hamilton, executive director of the Council of State and Territorial Epidemiologists.
“When things come in with missing information, we have to try to put the pieces back together,” she said. “We call the provider back or look at other data sources. But that takes time.”
The Trump administration issued guidelines in early June that required laboratories to report things like patients’ age, race and ethnicity, so public health officials can better understand the demographics of the coronavirus pandemic. The rules, which do not take effect until August, state that laboratories “should” also provide patients’ addresses and phone numbers but do not mandate it.
This type of information often gets lost, as the typical test data take a journey from doctor’s office to laboratory to public health authority and back to the original doctor, not necessarily in that order. At each stage, technological failures can slow or disrupt the flow of vital information. Doctor’s offices do not always have digital systems capable of talking to the lab that analyzes the result. Laboratory software often omits information that public health authorities will later need. And transmissions by fax or spreadsheet can require workers to manually reenter information into their computer systems, increasing the risk of errors or duplicate entries.