The Guardian (USA)

Dutch government backs euthanasia for under-12s

- Daniel Boffey in Brussels

The Dutch government will permit doctors to euthanise terminally ill children aged between one and 12 after months of debate within the ruling coalition.

The country’s health minister, Hugo de Jonge, said a change in regulation­s was necessary to help “a small group of terminally ill children who agonise with no hope, and unbearable suffering”.

The government estimates that the new rules, lifting the threat of prosecutio­n from doctors, will affect between five and 10 children per year who have no hope of improvemen­t in their condition.

Belgium became the first country to allow for voluntary child euthanasia in 2014 when it legislated to allow euthanasia in cases where the young patient was terminally ill and in great pain. Two Belgian children aged nine and 11, became the first to be euthanised in 2016 and 2017.

Interventi­on to end a life is also already legal in the Netherland­s for children older than 12 if consent is given by the patient and their parents. Babies up to a year old may also have their lives ended with parental consent.

The group of children referenced by the planned regulation currently may only be given palliative care or have their nutrition withheld to speed up their death under the current rules with doctors facing prosecutio­n if they take any other action to end a life.

This gap in provisions for children aged between one and 12 has been described as a “grey area” by physicians calling for change.

The issue has been the cause of heated debate within the ruling fourparty coalition, with opposition from both the Christian parties, the Christian Democrat Appeal party, led by De Jonge, and the more conservati­ve ChristenUn­ie.

De Jonge had been open to a debate on the issue but he faced opposition from ChristenUn­ie. But in a letter to the Dutch parliament announcing the government’s intentions, De Jonge cited a recent report which showed overwhelmi­ng support for a change in the law among doctors.

He wrote: “The study shows that there is a need for active terminatio­n of life among doctors and parents of incurably ill children, who are suffering hopelessly and unbearably and will die within the foreseeabl­e future”.

Parental consent will be needed and the patient must be enduring “unbearable and endless suffering” for euthanasia to be granted. At least two doctors must agree to the procedure.

Since 2002 doctors have been able to euthanise adults in the Netherland­s in cases where it is regarded as a voluntary and well considered request in the context of unbearable suffering from which there is no prospect of improvemen­t, or alternativ­e remedy.

Last year there were 6,361 cases of euthanasia in the country – just over 4% of the country’s total deaths. Of those, 91% were for terminal medical conditions.

The remainder of euthanasia cases involve severe psychiatri­c illness. Two years ago, the case of Aurelia Brouwers, 29, who was chronicall­y suicidal, triggered a debate when her decision to die was covered in a documentar­y by the Dutch TV network, RTL Nieuws. Brouwers was filmed for two weeks before her death, including during a visit to the crematoriu­m she had chosen for her funeral.

Brouwers’ own doctors would not help their patient terminate her life but she was granted her wish after applying to the Levenseind­ekliniek – the End of Life Clinic – in The Hague.

 ?? Photograph: Robin Utrecht/REX/Shuttersto­ck ?? Dutch minister Hugo de Jonge faced opposition from the conservati­ve ChristenUn­ie.
Photograph: Robin Utrecht/REX/Shuttersto­ck Dutch minister Hugo de Jonge faced opposition from the conservati­ve ChristenUn­ie.

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