The Kansas City Star (Sunday)

RFK Jr. says doctors found a dead worm in his brain in 2010

- BY SUSANNE CRAIG

In 2010, Robert F. Kennedy Jr. was experienci­ng memory loss and mental fogginess so severe that a friend grew concerned he might have a brain tumor. Kennedy said he consulted several of the country’s top neurologis­ts, many of whom had either treated or spoken to his uncle,

Sen. Edward Kennedy, before his death the previous year of brain cancer.

Several doctors noticed a dark spot on the younger Kennedy’s brain scans and concluded that he had a tumor, he said in a 2012 deposition reviewed by The New York Times. Kennedy was immediatel­y scheduled for a procedure at Duke University Medical Center by the same surgeon who had operated on his uncle, he said.

While packing for the trip, he said, he received a call from a doctor at New York-Presbyteri­an Hospital who had a different opinion: Kennedy, he believed, had a dead parasite in his head.

The doctor believed that the abnormalit­y seen on his scans “was caused by a worm that got into my brain and ate a portion of it and then died,” Kennedy said in the deposition.

Now an independen­t presidenti­al candidate, the 70-year-old Kennedy has portrayed his athleticis­m and relative youth as an advantage over the two oldest people to ever seek the White House: President Joe Biden, 81, and former President Donald Trump, 77. Kennedy has secured a place on the ballots in Utah, Michigan, Hawaii and, his campaign says, California and Delaware. His intensive efforts to gain access in more states could put him in a position to tip the election.

He has gone to lengths to appear hale, skiing with a profession­al snowboarde­r and with an Olympic gold medalist who called him a “ripper” as they raced down the mountain. A camera crew was at his side while he lifted weights, shirtless, at an outdoor gym in Venice Beach in Los Angeles.

Still, over the years, he has faced serious health issues, some previously undisclose­d, including the apparent parasite.

For decades, Kennedy suffered from atrial fibrillati­on, a common heartbeat abnormalit­y that increases the risk of stroke or heart failure. He has been hospitaliz­ed at least four times for episodes, although in an interview with the Times this winter, he said he had not had an incident in more than a decade and believed the condition had disappeare­d.

About the same time he learned of the parasite, he said, he was also diagnosed with mercury poisoning, most likely from ingesting too much fish containing the dangerous heavy metal, which can cause serious neurologic­al issues.

“I have cognitive problems, clearly,” he said in the 2012 deposition. “I have short-term memory loss, and I have longerterm memory loss that affects me.”

In the interview with the Times, he said he had recovered from the memory loss and fogginess and had no aftereffec­ts from the parasite, which he said had not required treatment.

Asked recently whether any of Kennedy’s health issues could compromise his fitness for the presidency, Stefanie Spear, a spokespers­on for the Kennedy campaign, told the Times, “That is a hilarious suggestion, given the competitio­n.”

The campaign declined to provide his medical records to the Times. Neither Biden nor Trump has released medical records in this election cycle. However, the White House put out a six-page health summary for Biden in February. Trump released a three-paragraph statement from his doctor in November.

Doctors who have treated parasitic infections and mercury poisoning said both conditions can sometimes permanentl­y damage brain function, but patients also can have temporary symptoms and mount a full recovery.

Some of Kennedy’s health issues were revealed in the 2012 deposition, which he gave during divorce proceeding­s from his second wife, Mary Richardson Kennedy. At the time, he was arguing that his earning power had been diminished by his cognitive struggles.

Kennedy provided more details, including about the apparent parasite, in the phone interview with the Times, conducted when he was on the cusp of getting on his first state ballot. His campaign declined to answer follow-up questions.

In the days after the 2010 call from New YorkPresby­terian, Kennedy said in the interview, he underwent a battery of tests. Scans over many weeks showed no change in the spot on his brain, he said.

Doctors ultimately concluded that the cyst they saw on scans contained the remains of a parasite. Kennedy said he did not know the type of parasite or where he might have contracted it, though he suspected it might have been during a trip through South Asia.

Several infectious disease experts and neurosurge­ons said in separate interviews with the Times that, based on what Kennedy described, they believed it was likely a pork tapeworm larva. The doctors have not treated Kennedy and were speaking generally.

Dr. Clinton White, a professor of infectious diseases at the University of Texas Medical Branch in Galveston, said microscopi­c tapeworm eggs are sticky and easily transferre­d from one person to another. Once hatched, the larvae can travel in the bloodstrea­m, he said,

“and end up in all kinds of tissues.”

Though it is impossible to know, he added that it is unlikely that a parasite would eat a part of the brain, as Kennedy described. Rather, White said, it survives on nutrients from the body. Unlike tapeworm larvae in the intestines, those in the brain remain relatively small, about a third of an inch.

Some tapeworm larvae can live in a human brain for years without causing problems. Others can wreak havoc, often when they start to die, which causes inflammati­on. The most common symptoms are seizures, headaches and dizziness.

There are roughly

2,000 hospitaliz­ations for the condition, known as neurocysti­cercosis, each year in the U.S., according to the journal Emerging Infectious Diseases.

Scott Gardner, curator of the Manter Laboratory for Parasitolo­gy at the University of NebraskaLi­ncoln, said once any worm is in a brain, cells calcify around it. “And you’re going to basically have almost like a tumor that’s there forever. It’s not going to go anywhere.”

Gardner said it was possible a worm would cause memory loss. However, severe memory loss is more often associated with another health scare Kennedy said he had at the time: mercury poisoning.

Kennedy said he was then subsisting on a diet heavy on predatory fish, notably tuna and perch, both known to have elevated mercury levels. In the interview with the Times, he said he had experience­d “severe brain fog” and had trouble retrieving words. Kennedy, an environmen­tal lawyer who has railed against the dangers of mercury contaminat­ion in fish because of coal-fired power plants, had his blood tested.

He said the tests showed his mercury levels were 10 times what the Environmen­tal Protection Agency considers safe.

He also said in the deposition and the interview that he had contracted hepatitis C through intravenou­s drug use in his youth. He said he had been treated and had no lingering effects from the infection.

Kennedy has spoken publicly about one other major health condition – spasmodic dysphonia, a neurologic­al disorder that causes his vocal cords to squeeze too close together and explains his hoarse, sometimes strained voice.

He first noticed it when he was 42, he said in the deposition. Kennedy for years made a significan­t amount of money giving speeches, and that business fell off as the condition worsened, he said.

He told an interviewe­r last year that he had recently undergone a procedure available in Japan to implant titanium between his vocal cords to keep them from involuntar­ily constricti­ng.

 ?? JIM WILSON New York Times ?? Robert F. Kennedy Jr., shown on March 26 in Oakland, California, said in a 2012 deposition that a doctor told him an abnormaili­ty seen on scans of his brain in 2010 “was caused by a worm that got into my brain and ate a portion of it and then died.”
JIM WILSON New York Times Robert F. Kennedy Jr., shown on March 26 in Oakland, California, said in a 2012 deposition that a doctor told him an abnormaili­ty seen on scans of his brain in 2010 “was caused by a worm that got into my brain and ate a portion of it and then died.”

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