Budget cuts endanger families of children with disabilities Letters

As a parent of a young man with severe nonverbal autism and intellectual disability, I am always asking myself difficult questions like, “What’s next?” Well, according to current state budget recommendations, the answer is nothing.

Transitions are not only extremely hard for individuals on the spectrum but their families as well, especially when your child’s disability is accompanied by severe and challenging behavior. As the school year began I already was dreading its end due to my son’s impending graduation. After reading the budget recommendations, my dread quickly turned to absolute fear. My son already was struggling with a life change brought about by simply moving his sister from home to college. As a person educated in problem behavior in autism, even I wasn’t prepared for the regression, behavioral increases, emotional liability, financial responsibility and effect on his younger sibling brought about by this adjustment. A milestone most of us handle with a few tears, along with enormous pride when our children advance in their life. I could no longer work as his behavior became more serious. We are all aware of how well one average income supports a family of five these days. What was most disconcerting was the lack of help available to young adults with severe needs. Everywhere I turned the answer was the same. We are to be prepared to live with him until our age makes it no longer possible.

I encourage everyone to please take a moment and talk to a family like mine so that you can understand how the recommended cuts to the Department of Developmental Services will destroy families. Then please make an effort to make your voice heard. Visit http://ofcw. org and sign the Our Families Can’t Wait petition to help fund a better life for those with disabilities. — Crystal Sacco

West Haven