The Middletown Press (Middletown, CT)

5 pieces of data we don’t have

Virus informatio­n that has not been collected or shared publicly in Conn.

- HEARST CONNECTICU­T MEDIA EXCLUSIVE By Jordan Fenster and Dan Haar

Since the first case of coronaviru­s was confirmed in Connecticu­t, the state has been sharing data on the virus’ victims.

That data has included the number of tests performed, the number of hospitaliz­ations, the number of deaths and a variety of demographi­c and geographic breakdowns.

It’s that data — shared by Gov. Ned Lamont each day at his pandemic news briefing — that has guided policy as the state first restricted businesses and individual gatherings in an effort to control the virus, and then began to reopen the state in phases.

But some data has been missing — figures that could tell the public and policymake­rs much more about how to move forward in the crisis.

“The reporting that’s come out is the top layer of basic facts,” said Richard Martinello, medical director of infectious diseases at

Yale New Haven Hospital.

For example, while the state had shared the raw number of COVID-19 tests performed each day across Connecticu­t, it was not known until recently how many tests were performed town-by-town.

The objective, said state Sen. Alex Kasser, DGreenwich, who had pushed for that town-bytown data to be released, should be “to formulate the best policy for the state … really precise guidelines and really precise, data-driven metrics to guide our policy.”

More robust data collection and sharing would be helpful, Martinello said, for both physicians and politician­s as the state begins to open up.

“It would be very helpful on a community level in order to figure out this problem we call COVID,” he said.

Here are five pieces of data about coronaviru­s in Connecticu­t that are either not being collected, have been collected but not compiled into a usable form, or have not been shared publicly:

1. Excess mortality

One measure of deaths in the crisis is the direct toll from COVID-19. But how many people are dying over and above the normal rate? That’s called

excess mortality and we don’t have it — even though the state Department of Public Health reported it promptly, broken down by age, after the 1918 flu pandemic.

Excess mortality is determined by taking a fiveyear average of total deaths over a period of time, say January through April, and then comparing it against the same period of time in the target year. That’s another way of gauging the death toll in a crisis.

“What epidemiolo­gists are able to do then is look and see the first wave of COVID and how that compares to historical data,” Martinello said. “Mortality is a very objective outcome.”

This data is shared with the CDC by the state, but The New York Times, in a state-by-state comparison, reported that Connecticu­t

was one of a few states that had not been doing so recently for an analysis.

2. Underlying medical conditions

People often don’t die of just one thing, and sick people often have more than one condition. Knowing those other factors a patient may have, known as co-morbiditie­s — diabetes, for example, or chronic lung disease — can point to potential outcomes for patients and help guide policy.

For most COVID-19 cases, we don’t have that data in a usable form. That’s because health profession­als reporting deaths and illnesses often don’t record co-morbiditie­s. Until just a few weeks ago, the state Department of Public Health didn’t include relevant co-morbiditie­s in the forms that were used for coronaviru­s data collection.

“The longer a form is and the more we collect, the less likely people are to fill it out,” said Lynn Sosa, the deputy state epidemiolo­gist. “In the past month we have have expanded it greatly.”

Connecticu­t’s chief medical examiner, James Gill, called it “a very important public health issue,” adding that some people filling out death certificat­es “just list the main cause of death.”

“This is unfortunat­e because it deprives the public health investigat­ors important informatio­n about risk factors,” Gill said. “If it is not on the death certificat­e, it is essentiall­y lost for public health purposes.”

The state does share this data as part of the CDC’s COVID-NET project, but it’s only collected from Middlesex and New Haven counties.

3. Hospital discharges and admissions

The state shares the raw number of current hospitaliz­ations — how many people are in Connecticu­t hospitals with COVID-19 on any given day. The continued decline in this metric has been one of Lamont’s main justificat­ions for reopening the state.

What we don’t know is how many patients are admitted to the hospital each day, and how many

 ?? Pat Eaton-Robb / Associated Press ?? Gov. Ned Lamont
Pat Eaton-Robb / Associated Press Gov. Ned Lamont
 ?? Justin Tallis / AFP via Getty Images ?? A blood sample ready to be sent to the lab to be tested for antibodies related to COVID-19.
Justin Tallis / AFP via Getty Images A blood sample ready to be sent to the lab to be tested for antibodies related to COVID-19.

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