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Florida COVID data is unreliable, confusing

I learned a hard lesson when the state fired me

- Rebekah Jones

Florida has a data problem. While the rest of the world drowned in third-party, speculativ­e and nonscienti­fic coronaviru­s data at the onset of the pandemic, the Florida Department of Health stood proudly and steady in its position as the singlepoin­t source of informatio­n in the state.

That monopoly over COVID-19 data in the state is partly my fault. I worked very hard for several months to ensure that the health department was the only authority over the data, and because I was the sole creator and publisher of that data, I trusted its authentici­ty and accuracy above all else.

I learned a hard lesson about data integrity when I was fired in May for refusing to manually manipulate that data at state leaders’ request. Data is only as trusted as its keeper, and the department’s credibilit­y evaporated faster than dew on the grass in the Florida morning sun after news of my firing spread across the globe.

A few weeks later, on the day Gov. Ron DeSantis announced the full reopening of K-12 schools in August, Scott Pritchard, the lead epidemiolo­gist for Florida’s COVID-19 response since January, abruptly quit after 15 years of service. The Miami Herald cited a former health department employee, speaking on the condition of anonymity, who said Pritchard was afraid DeSantis would use him as a scapegoat once cases “started exploding.”

Tanking trust in state data

Trust in the health department tanked — also partly my fault — and consequent­ly, secondary and nonauthori­tative data resources have popped up left and right. Public distrust in the officials who are supposed to lead us opens up too many avenues for amateurs and pseudo scientists to fill the data hole with unreliable, unvetted and unsourced informatio­n.

Still, there were other reliable state agencies pushing back against disruptive disinforma­tion. One of them provided data on hospital capacity that should have been added to Florida’s COVID-19 dashboard months ago, but never was.

I was told the public data wasn’t “ours” to use. But I published it, and it became intensely controvers­ial when the public realized the state’s political messaging didn’t match its own data. Not only that, data from different state department­s didn’t match up.

The problem with the confusion is that this data is used as a proxy for active hospitaliz­ations. Misuse of hospitaliz­ation data stretches from bloggers all the way to The New York Times. Taking the number of people hospitaliz­ed today versus the number reported yesterday doesn’t tell you how many more were hospitaliz­ed in the past day — it tells you how many reports of hospitaliz­ations the state received, which could include hospitaliz­ations from cases back in March. The same is true of death data.

On top of that, Florida officials are publishing zero data about testing and cases in state prisons. They also don’t publish data about testing, cases and deaths in jails.

They stopped publishing demographi­c data about who’s being tested after firing me in May, so we have no idea whether surges in cases by age, gender, race or ethnicity are truly spikes or whether they’re proportion­al to the number of people being tested within those demographi­c groups. They’ve never published testing or death data by ZIP code, either. And they don’t publish dates of deaths, making it difficult to measure and monitor trends.

Another black hole

Contact tracing is another black hole. The state claims to be doing it but won’t publish any data on it at all. And since I started publishing my own dashboard, it has made unannounce­d and abrupt changes in informatio­n such as reporting periods and what testing is reported.

All of this amounts to highly disorganiz­ed and conflictin­g data that most people wouldn’t know how to make sense of. Maybe that’s what Florida authoritie­s want — to create confusion so they can dismiss any damning informatio­n as a misinterpr­etation of data.

Florida was once hailed as the gold standard in data transparen­cy and accessibil­ity. That was my plan. Now it’s seen as one of the most corrupt and inaccessib­le systems in the country. That is entirely the leaders’ fault.

If Florida is to come out of this pandemic stronger, it needs the help of scientists like me and others across the state. To do that, we need data. It’s time for Florida officials to step up to fix the data problem they created. Rebekah Jones, who helped create the Florida Department of Health’s virus statistica­l dashboard, said she was fired because she would not change data. Gov. Ron DeSantis’ office has said that she was let go for being insubordin­ate. Jones has launched her own data website, “Florida COVID Action.” This column first appeared in Treasure Coast Newspapers.

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 ??  ?? Rebekah Jones is a former scientist for the Florida Health Department.
Rebekah Jones is a former scientist for the Florida Health Department.

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